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The Stumble Inn The place for social chat for our M.S. community.  |
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| The Stumble Inn The place for social chat for our M.S. community. |
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07-30-2010, 12:05 PM
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Junior Member
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This forum goes on and on about how great it is with supporting and reaching out to help each other
Well like other boards I've 'tried' joining, all of them including this group is a clique! Yes I know many of you have been on the board for years and years. That's who many of you only respond to - each other. Also, since the majority of you are American it seems you discriminate. Yes Yes I know there are a few people from Australia (only one I can think of) maybe one from S Africa. But most of you behave like a 6th grade school yard. The popular kids and the unpopular. I live in a different time zone 7 hours ahead. I am quite aware that chatting live with someone is near to impossible. But a nudge, an acknowledgment, more than a 'thanks' would be nice. The only time I get a real response is if I PM someone directly - to those folks thanks you've been great. But what is the point of posting and hoping to get a response 'ANY RESPONSE' but only get 3 responses to 10 posts you put up? Isn't it bad enough we struggle with our own health and we come here hoping for indiscriminate help, we have to wait and hope someone greets you, responds to your post or simply reaches out. I know this sounds like I'm whining - I'd rather say something now then disappear and not share my feelings on this 'support' board. Maybe its summer, maybe the board needs to revamp their style and inclusion clause, maybe some are too sensitive to be here. Well, it's been fun at times, but mostly lonely for me. I'm gonna take a break and regroup. Thanks
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DX:June 2007 Plasmapheresis:2007 Cyclophosphamide :07/08 Rebif 44 :2008 -09 Copaxone: 2009 ongoing atypical RRMS NEVER assume! I may not look sick but you should see my brain! . . “The thing that is really hard, and really amazing, is giving up on being perfect and beginning the work of becoming yourself.” Anna Quindlen(American Author, Journalist) |
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| "Thanks for this!" says: | agate (08-07-2010), Dejibo (07-30-2010), Kitty (07-30-2010), Lady (08-06-2010), NurseNancy (08-02-2010) |
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