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Old 10-04-2010, 10:37 AM #21
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Quote:
Originally Posted by Riverwild View Post
Everything is harder to do, and there's no one gonna pick up the freakin' slack and I have to do what needs to be done or else. I HAVE to work or I don't have meds. I have to pay the bills or they don't get paid. I have to shop, schedule maintenance on the vehicles, clean the house, deal with other family members' medical problems, reassure everyone else that it will be ok and then try to make sure it is. I'm sick of it becaue I used to be able to do it without even thinking of it and now everything is a freaking CHORE that saps my energy and makes me want to sit down and bawl.

This is my situation exactly! That is why there is nothing left over. I'm the mom / wife / daughter-in-law who always did everything for everyone and now it's too freakin' much.
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Old 10-05-2010, 11:35 AM #22
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I never say "I suck". I say "this sucks"
I'm going to sound kind of like a Pollyanna here, but here goes...

I am not MS. I do what I can when I can. I've had fibromyalgia for almost 30 years now, so I've been dealing with pain and fatigue most of my adult life. I'm not bragging, or patting myself on the back. I've just been dealing with this type of crap for years, and I used to push through and just do it, pain/fatigue or no.
MS is stronger though, so I do notice that it gets difficult to push through. I am doing quite a bit of work in therapy and in daily reading to strengthen living in this moment and letting go of the past AND future and dealing with right here right now. This is the only moment I have...and I choose how I will deal and react to things now.
I am a reactive personality...which kind of ramps up the sxs when I get stressed. But if I continue to think of what I used to be able to do, the anger and resentment builds and saps me...
so I just think of what I need to do now. I thank The Heavens every morning for a new opportunity to live another day, no matter how crappy I feel. And at night, I thank the Heavens once again for the day.
It takes a lot of work to think this way...therapy has helped tremendously, as well as the book "The Power of Now" by Eckhart Tolle.

Yes I do cry, vent, get frustrated, and occasionally wish I could walk, talk and think like a healthy person. But I've been given a bushelfull of lemons, and by God we're going to make a lot of lemonade and drink like there's no tomorrow.

Now check in with me tomorrow to see if I feel the same way...probably not
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Old 10-05-2010, 11:59 AM #23
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I hate lemonade.
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Old 10-05-2010, 02:04 PM #24
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Yup. Some days I'm Pollyanna, and some days I'm her evil step-sister.
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Old 10-06-2010, 01:53 PM #25
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I like to add plenty of rum to the lemonade...goes down so much smoootthhherrrr...
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