The Stumble Inn The place for social chat for our M.S. community. The Stumble Inn

Reply
 
Thread Tools Display Modes
Old 07-05-2012, 09:58 PM #1
KittyLady's Avatar
KittyLady KittyLady is offline
Member
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
KittyLady KittyLady is offline
Member
KittyLady's Avatar
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
Default

Quote:
Originally Posted by Sparky10 View Post
Hopefully the family will educate themselves. Maybe some day Sharon will embarrassed at that headline. Not wanting her son to die is a good, motherly response but not appropriate for the diagnosis of MS.
Well, Sparky, if you knew nothing about MS, I dont see how its not an appropriate response. I think after the initial shock wears off, and education obtained, reactions change. I really think that if there was more MS awareness out there, all newbies would have a much better reaction. But until that happens, reactions like this, I am afraid, are going to be the norm.
__________________
Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
KittyLady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (07-06-2012), Jules A (07-06-2012), Kitty (07-06-2012), SallyC (07-06-2012)
Old 07-06-2012, 07:22 AM #2
Sparky10's Avatar
Sparky10 Sparky10 is offline
Senior Member
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Sparky10 Sparky10 is offline
Senior Member
Sparky10's Avatar
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Default

Guess that didn't come out right, KittyLady. I'm trying to think of how to rephrase it into what I meant and it's getting too complicated!

My apologies.
__________________
RRMS, diagnosed '00

Everything will be alright in the end. If it's not alright, it's not yet the end.
Sparky10 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (07-06-2012), SallyC (07-06-2012)
Old 07-06-2012, 07:36 AM #3
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

I'm trying to think back to those early days when I didn't know what was wrong.....just knew there was something going on that shouldn't be. It was scary.

Too bad they're choosing to be judgmental rather than understanding. That's definitely not the right attitude and I feel sorry for those folks who reacted so harshly.

Sharon Osborne might have verbalized her fears......and we all have them and probably all of us have thought about death at some point during our journey with MS. When something like this happens to you it's one thing but when it happens to one of your children it's a totally different ballgame!

If someone in the media heard this then of course they were off and running with it. That's just the media. Anything that produces "drama" and anything that will sell.

Wish those members could channel their anger and distaste in a more productive way and try to educate folks about MS instead of just criticizing the way another reacts to their diagnosis.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jules A (07-06-2012), KittyLady (07-06-2012), SallyC (07-06-2012)
Old 07-06-2012, 08:26 AM #4
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

I knew nothing or less than nothing about MS. I thought in 3 years I would be in a chair, and dh wiping my bottom for me. then 10 years dead. Exactly what went thru my head.

As I become more educated about the disease, and got out in the world of MS I knew better, and educated others about it.

Never have a battle of wits with an unarmed man. Let them have their anger. it sounds like they dont get much excitement in their lives and this gave them something to be cranked up about.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jules A (07-06-2012), KittyLady (07-06-2012), SallyC (07-06-2012)
Old 07-06-2012, 08:39 AM #5
4-eyes 4-eyes is offline
Member
 
Join Date: Aug 2009
Posts: 642
15 yr Member
4-eyes 4-eyes is offline
Member
 
Join Date: Aug 2009
Posts: 642
15 yr Member
Default

And in reality, the person Jack was HAS died. Once you receive a big diagnosis, you are never the same. How one is able to assimilate that news and the symptoms that come with it are dependent on numerous factors. Still, it is a death...the death of the "old you." In the throes of emotion, it's hard to process that and the emotional becomes physical and vice versa.
4-eyes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (07-06-2012), Judy2 (07-09-2012), Jules A (07-06-2012), Kitt (07-06-2012), KittyLady (07-06-2012), MommadukesCRPS (07-07-2012), SallyC (07-06-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I hate the heat! Hate it! erinhermes Myasthenia Gravis 26 05-27-2009 07:22 PM
And you hate YOUR job? oldsteve On the Lighter Side 1 07-08-2008 05:45 AM
I hate MS and I think I hate my Neuro sheena Multiple Sclerosis 25 05-26-2008 05:04 PM
Saying's we hate !!! kithitter The Stumble Inn 54 03-20-2008 06:01 PM


All times are GMT -5. The time now is 05:09 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.