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Old 07-18-2008, 09:26 PM #31
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Originally Posted by SandyC View Post
Guess which one I heard the other day? My own mother telling me that Tanya, who lives in her apartment complex, who also happens to have ms, handles the heat just fine. She wonders why Tanya can lay out and doesn't seem affected by the heat like Jim and how Tanya says she has never been affected by the heat, blah blah blah.

I told my mom that everyone is different and to ask Tanya what she has just to be sure my mom has it right. lol.
she was close sandy.

tanya has PMS.

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Old 07-19-2008, 10:26 AM #32
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I could make a shirt that says MS Sucks and so do YOU if you ask me why! lmao
Priceless!!!

or, I've got lesions, how 'bout you?!

Herekitty...BUt you look sooo good, what do you mean you don't want to go out in the heat? it's such a nice summer day

I know healthy people who don't like to get out in this heat! Geesh....they figure they've got all this energy and cannot comprehend your not having the same levels. I used to get it from my own mother. Then she started to 'get it.'

Thanks for the thread!
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Old 07-19-2008, 10:34 AM #33
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Priceless!!!

or, I've got lesions, how 'bout you?!

How about one like the "got milk" t-shirts? Except this one would have a picture of a brain and say "got lesions?"
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Old 07-19-2008, 04:05 PM #34
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Default Can't bang my head against the wall...

Can't bang my head against the door...no more...no more ...no more.... Double negative! I can't repeat myself anymore. I think I should write a book or something...but to what end? We can't convince people; they think what they want to think, they see what they want to see. However, if they only knew ...that they are crazy in the head! (this is our little secret!
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Old 07-19-2008, 04:49 PM #35
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Originally Posted by Curious View Post
she was close sandy.

tanya has PMS.

Well, for some people, PMS might just be worse than MS. But, only in their own minds and opinions.

At least people with MS probably wont become homicidal maniacs just because someone ate the last chocolate bar in the house and didnt replenish the stash.
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Old 07-19-2008, 04:59 PM #36
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At least people with MS probably wont become homicidal maniacs just because someone ate the last chocolate bar in the house and didnt replenish the stash.

I don't know.......we're talkin' chocolate here..........
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Old 07-19-2008, 07:43 PM #37
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I try hard not to cry in my milk about the sxs...but it's so difficult when you feel awful, are undxd, and don't know why you feel so sick...it takes over your life, know what I mean?

My DD wants me to go back to the neuro, but my DH wonders if his NP's dx of depression is right....thanks for the support, honey

I'm trying hard to say, "I'm okay," when others ask how I'm doing. But I'm sticking to my guns and telling my DH like it is when he calls every day from work and asks. He's sympathetic and supportive, but it still drives me crazy when loved ones and the doc just don't get it...

We should also all get tshirts that says, "You like summer? You can have it!"
I like the cold of winter more than ever...
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Old 08-11-2008, 01:32 PM #38
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I try hard not to cry in my milk about the sxs...but it's so difficult when you feel awful, are undxd, and don't know why you feel so sick...it takes over your life, know what I mean?
That's exactly how I feel. My bro in law has a new baby and as soon as I walk in the door he hands him over to me. I am in so much pain after 2/3 minutes of holding the baby and he is just sooooo clueless. Ugh, at least my hubby takes the baby as soon as he sees what is happening.

I don't have MS, but find this thread relatable in my own way. I have PN.

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Old 08-11-2008, 01:50 PM #39
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I am also tired of trying to explain to my family and some friends that I cannot tolerate heat and have terrible fatigue and there is nothing I can do about it. I do not feel refreshed after my nap in the afternoon or having a good nights sleep. I am fatigued all the time and have been the entire time that I have had MS.

When I was on Avonex, everyone kept asking me if I was feeling better. I kept telling them no, the shots try to keep my MS from getting worse and do not make me feel better. I feel like crp and now have the problem with the damage to my thigh muscles and nerves to deal with.

It does get old going over this for the last 16 years but my best friends understand and know when I am fading when I am out with them. Thank heavens for best friends.
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