Ok.... so the last few days have been painful, to say the least. shoulder and neck (scalene specifically) have been killing me. my arm responds to any stimulus, and feels like its on fire and drives me up the wall. I almost had about 3 total meltdowns at work today. SO, I finally call my PM doc today to try and get an appt.... he doesn't get in til 1pm today, so no appt, but the nurse told me I could go to the ER if I needed to (YEAH, right). I told the nurse that I was out of my breakthru med, and asked her to have it refilled- i'd pick up the Rx this afternoon. so.... 3:30, still MISERABLE, I walk into the dr office HOPING he'd see me, and 5 min later, they say there's nothing they can do, that I should go to the ER. I went to the ER checked in at 3:45..... and waited. miserably. they call the on-call doc at the PM clinic and nobody called back until like 8pm. Luckily (I thought) it was MY doc who called..... I guess nobody in his fking office gave him the message or told him that I was there today because all he said was continue taking his meds and call in the morning. I ALREADY DID THAT TODAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !! so ****** off right now..... grrrrrrrrrrhhhhhhhhhhhhhhhhhhhhhh

Oh my, you had a bad day dabbo. Bless your Heart! I hope you get some relief soon!

Peggy

oh dabbo, sorry

you should tell your doc you need to run with a surplus if you are prone to running out like this, or that he has GOT to be more responsive!! You called on a weekday, in the morning, and then followed what the office said to do...not cool! BE sure to tell him exactly what happened today when you do finally see him.

Mark,
I have the involuntary jerks in my arms too and also when I'm asleep or just falling asleep. I've woke myself up numerous times. One time it happened when I was in the hospital and I hit my hand really hard on the bed rails and it pulled the IV out. I don't know what causes this though- I don't have the problems with my arms that many of you here do, so I don't know....

Dabbo, I thought you got that whole mess sorted out and your PM said to conatact hime direct that he would take care of your pain needs.

Red, I have no idea what causes the jerks, but yes they will wake me out of a deep sleep also, in a a way glad, though sorry to hear that I am not the only one that has this happen.

Hi I have had a night and day from the pits of hell.

I had a migraine yesterday afternoon after spending over three hours on the phone with the four letter work computer company AGAIN there is a problem with my computer and it needs fixed!!!!!!!!!!!!!

Due to this being on the cpu for so long....I ended up with a hellish migraine. I took my axert twice so only allowed to take two within 24hrs due to heart side effects.

I am therefor having to rely on my other meds. I have taken percocet and diazepam. After my DH was on the phone with me as I told him I was ready to go to Emerg and wanted to die....he told me that there are new studies that say that diazepam is good for migraines and that it shows some good results in decreasing pain and getting rid of the headache....

well I took and extra axert....ahhh it's only my heart and took a double dose of diazepam and I still feel crappy and likely won't shower today but I am able to be here with ya'll. I am not right yet....still can't see properly from my right eye.

Just called MT and hope like the dickens that she will be able to fit me in as I am in AGONY I know it is my neck causing my pain as the last massage helped for a week so I may have to have weekly massages...ah at $95.00 a week for 1.5 hours.....but she is amazing....What is money if you are having good pain relief.

I am not able to cope with head pain as well as the pain everywhere else. If I lose the abiltiy to think I am not able to function....is anybody???

I have had a lot of moments this week saying I can't live anymore. I can't function well like this I want out and away from it all....a break a way to be out of it all.....yeah waiting a year for my pain clinic.....not appropriate. I want to know how many people kill themselves waiting for pain relief. I dont' want to be a statistic. I say this is what I want to do but don't think I will. I have no thoughts of how to do it.....but did tell Marc yesterday I would take a pile of pills and then he can take me to the er and say he found me like that .....and maybe then I could get into the pain program.

Marc tried to get me into the pain program faster by talking to the head of the cancer center he works at and the doc at the Pain program the head of the center talked to stonewalled him so nobody gets a way into the program faster...good I guess but again how many live past the year wait mark!!!

Thanks for the vent guys.....I feel great affection for all of you and thank you all for your support and affection over the last five years!

Love to you all,
Victoria

soft hugs for all

I hope this isn't a indication of how winter will affect everyone
I wish a miracle breakthrough soon for all of you.

Poor Victoria. I saw the double-low over canada and was wondering how you were dealing with that. It's supposed to slide into the US... I start aching here in the South when Low systems move near the MidWest (go figure?). I hope it loosens it's grip on you soon. Hang on Girlfriend!!



hoping everyone is holding on, too!

Victoria; I hope your message therapist can work some magic on you soon. Don't ever give up hope, I'm praying for you.

Well,

thank God for diazepam it has settled things for now....thank you all for your well wishes!

I will see my MT tomorrow and she hopefully will work miracles!! Not weather I don't think....house is warm....

thanks agian
love to all,
Victoria