Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-06-2007, 05:13 PM #1121
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Default Today I

Wish everyone a great weekend. I hope all those who have had surgery recently are feeling better and those of you who suffer daily have a half decent few days...
Also...I am friggin glad the week from heck is almost over and the wine is chilling for 5 pm tomorrow!!!



Rachael
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Old 09-06-2007, 06:04 PM #1122
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Jamy- cranio-sacral work for those headaches...really, it SOOOOOOO helps. And no headaches makes EVERYTHING better!!!!
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Old 09-06-2007, 06:37 PM #1123
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Johannakat,

I have been going for Cranio-Sacral Massages/Treatments and had once yesterday. I haven't noticed a LOT of relief but then again due to how busy the therapist is the appointments haven't been overly consistant. But I am not giving up hope, yet!

I will be happy to see my neuro again in October...I am hoping he has some ideas. My neck seems to be one of my biggest bothers, there had been talk at one time of redoing my c-spine MRI but it was never done (one was done just weeks before I got rear ended).
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Old 09-06-2007, 07:31 PM #1124
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Today I'm reviewing my whole case file from Worker's Compensation. I had an MRI of the cervical spine on August 17th. I was told by the Physiatrist that ordered the MRI that her secretary would call me for an appointment to discuss the results. Today reviewing my file I have discovered Worker's Compensation recieved the said report on August 23. Meanwhile, I haven't gotten the call yet. Even though I feel there has been no fairness with my case with Compensation I believed there would be some help from medical professionals to come up with some kind of plan to relieve pain. I've been told I have myofascial pain and an element of TOS, "but it's not my main problem". I am bitter, but I am so thankful for all the support of a wonderful husband, though not perfect loves me dearly, and for the support of my family and I am so grateful to my ToS family and to all the great friendships made through this forum.
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Old 09-06-2007, 07:37 PM #1125
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Default lots of people feeling the same

hi Victoria,

i just answered withmore's post and came here to see yours.
it seems lots of us are having a hard time right now.
i am having a huge flare and am also not feeling sociable.
"this too shall pass" i'm waiting for that day.
i want to feel better so bad...doing nothing helps me.
Hope
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Old 09-07-2007, 08:00 AM #1126
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I, am sorry to neglect everyone here and not address all since my last post,but I have fallen so far behind my arm would fall off!!! Sure you all know this is not like me to do this, in fact I think this is/or may be the first or second time that I have done so... I have been lurking and have typed here and there on othere threads, but have not been able to do so much... been in a bit of a flare after my last Drs appointment, and it was with Dr T., I was showing off and over stretched by my own doing and paid for it!!!!

I was wondering if anyone has purchased a shoulder abduction splint/sling and if so, where did they get it online or a med supply store

Victoria, Johanna is correct on the old BT forum there was a Bra thread maybe Jo or somebody could revieve it over to here... and not a problem I never had the urge to wear one myself, though do do feel around for any hard lumps or things that do not belong as my dad had a pre-cancerous lump removed and think this needs to be stessed more to all males as macho as they want to be

hairdresser.. workers comp. is not for the employee, it is a true shame the hell they put you through I reached a point that I am done fighting them... I hurt physically and mentally and do not need the added agrevation...I put all my fight into SSD, knowing that my TOS/RSD cervical disc disease will never get better

In csae if anybody was wondering about how my intrathecal pump (pain pump) is working, well it will be probably sometime in November before I reach the theraputic doseage so right now, I am still hostage to my oral pain meds and my RSD is creeping up my right leg from my toes feels like little Gremlins (Goobers nephews & neices) stabing away with ice pics!

Does anybody else have involuntary nerve jerks in thier arms? The worsre one was the other night in my sleep, I had the remote control in my hand (**a male thing ** ) and somehow my arm jerked and the remote flew into the headboard and woke both my wife and myself, VERY STARTLED!

Oh well, I typed way to much here all, and I do have to say it was very nice to see all the new visitors to the TODAY I thread as well as everybody else... just like coming home . I wish all a good weekend incase I do not post before

MARK~n~GOOBER
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Old 09-07-2007, 10:56 AM #1127
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Hey Markwas wondering where you have been. I get the involuntary jerks in my fingers. Especially while typing. I end up backspacing alot! Hope you get some relief from the pump.

Today I have too much going on. Son's first high school football game at 4. He's the starting center. Daughter's field hockey game at 5, a 1/2 hour away. Then, son has a dance at 7. Also, daughter has to be picked up around 9 this evening from a different game. Tomorrow is our neighborhood block party. Lots of fun. Usually around 100 people. Have to cook a casserole. We get a dj and beer, wine, hamburgers, hot dogs, it's a great time. So I do have that to look forward to.

Have a good one! Linda
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Old 09-07-2007, 01:17 PM #1128
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Default Lots going on

I guess the change of seasons has been effecting us all in a negative way....or is it back to school with the Mom's and Dad's????? Working too hard and knowing what it will do to you but you continue???

I myself am blessing my massage therapist. She did a hell of a massage on me and does muscle stripping and nerve mobilization for my whole right arm and as for the headaches I have had a significant reduction in them due to the work she did. She got rid of the knots at the base of my neck which are calmed down considerably and touch wood they will stay calm. I have not had the eye pressure or had to take a migraine med since. I feel much better and she did a lot of mobilization. It was amazing!!! Hurt a bit but it was well worth it.

So I am feeling better, but still not where I want to be.

Take care all and chin up to the insurance companies that want to stick us in mud up to our eye balls.....they can bite me!!!!! sorry venting...thanks

love and hugs to all,
Victoria
P.S. I am now using my new COMPUTER no virus touch wood and I hope that it continues to be a good computer....is Vista so hope I can adapt to it.

Lots of love,
Victoria
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Old 09-07-2007, 09:04 PM #1129
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Victoria, you sound good. After a long day, I am going to get ready to get in bed. My son's football team won and also daughter's field hockey. Just alot of running around. My poor 4 year old had 3 shots at the doctors today. We were not prepared and she was very upset. Let's just say that if she was a child in the Monsters Inc movie, her scream would have powered the world for one year! I felt so badly I gave her a lolli pop right away, bought McDonald's on the way home, and then bought her cupcakes! She still has the three bandaids on her arms and won't let me take them off.

Have a good one, Linda
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Old 09-11-2007, 10:21 PM #1130
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Linda... I forget how many in your house hold you said are Eagles Fans, however but I see my boys weak as they may be they are this year were able to send them back to the city of brotherly love for a tune-up Linda, Your thread was very touching and the area you live in ... my thoughts can not form the word to put into words of comprehension from what I posted what touched me first hand!

Today, had the first of a few estimates for a new roof on my house, bid was 9,000 I would have been able to have done it with my brothers help for about 3,100 god do I hate these diseases!!!

I do hope everybody had a good safe and pain free weekend

Mark and soon to be exiled Goober
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First you forget names, then you forget faces.
Then you forget to pull up your zipper.
But it's worse when you forget to pull it down.

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