Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-22-2007, 04:47 PM #1361
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just want to say a quick hi, having a rough week
premenstrual and all contributing to extra bad symptoms.
just wanted to let you all know I was still thinking 'bout you, though.

Johanna
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Old 10-23-2007, 09:16 PM #1362
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Default Yesterday I....

I hope all in SoCal are doing ok.......

Yesterday I had a cortisone shot in my right shoulder... the Ortho thinks I have Rotator Cuff Impingement/bursitis. Yipee. It was sore yesterday, but today it HURTS LIKE HE LL. I can't reach across my body, behind my back, etc etc. Doc told me I "would feel a little pressure and be a little sore" for a couple of days. This is NOT sore. This is pain. I guess the upside is that I haven't paid as much attention to my left side. Maybe for my next act I'll take a hammer to a toe!
just kidding.....
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Old 10-24-2007, 03:35 AM #1363
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Default Today I..

say to dabbo that I am sooooo sorry to hear about your shoulder/rotator cuff problems. I know them so well. And I know how it hurts.
POOOOR DABBO!!!

To all others readers and writers from my dear "extended" family I say I am sorry that I didn`t write regulary.
At work there is a lot to do and after a long day on the computer I am totaly k.o. and don`t want to type anymore.
With my shoulder problem I am still in an unsatisfied situation - nevertheless I will spent the next week in France for holidays. Juhuuuu!!!

so I wish you all the best and hope that pain (all kind of pain) is as low as possible!

Very nice greetings and all the best,
Barbara
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Old 10-24-2007, 03:36 AM #1364
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Dabbo

lots of TOSers have operable shoulders - have you seen an MRI? I wonder if it's an operable ortho issue, or, TOS - another compression. Mixing in other ortho stuff is tricky, like elbow, carpal, etc. when we've already got TOS set in.

Just talkin'.

Take care. Don't push it.

ooops, did that hug hurt???
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Old 10-24-2007, 04:04 AM #1365
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I have just about completed all the therapy I have approved by owcp and I still cannot raise my arm above my head or behind my back. Beyond certain limits the pain is intense. Also, have cts, radial, ulnar, median nerve problems on that arm/ hand. My pinky sticks out and finger on next to thumb won't cross other one.
I wonder if this is going to be permanent?
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Old 10-24-2007, 04:13 AM #1366
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Heart

Billy, sweet heart, I am so sorry. That's a lot of ***** going on. I think you should post a new whole thread, and put that out there, and see what wisdom the group has for you. And support, too. I forget how long you've had these things goin' on. I'm kinda bossy, I guess, but I think everyone will want to post a bit on your stuff - because it's so important now.

God bless you Billy.
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Old 10-24-2007, 04:18 AM #1367
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I will start new thread
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Old 10-24-2007, 04:21 AM #1368
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Trophy I'ma champ

My pain is off the charts right now. I've blown past 10...

I moan, ache, roll around on the bed, cry...silent tears that just leak...

I sneak in my undies out to the jacuzzi at 4 am to get relief...u haven't the arm strength to pull on a latex bathing suit for X's sakes...

When I sit here, I play MTV playlists to get my head out of the pain. Lots of Timberlake and Linkinpark right now. I rediscovered NIN. The pain makes me choose some strange music cuz it hurts. In fact, Johnny Cash's Hurt sounds good right now to me.

I told you'all the pain is so high, so bad, that I am loosing it...this may be proof.

my days and nights are mixed up, they are little bricks of bits of pain, with my eyes open as little as possible...

Like a fever this pain will break. It has before. Then, the sun shines.
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Old 10-24-2007, 08:57 PM #1369
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Hi all,
Just want to pass prayers of love and healing to all who need it right now and to say I feel your hurt and pain......

love and hugs to all,
Victoria
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Old 10-25-2007, 06:34 PM #1370
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Default No stretching???

well, feldenkrais PT guy told me today to stop stretching more than every 2 weeks. He said that i am so flexible that perhaps i am aggravating my nerves my stretching so much. He has put me on a new regimin of about 5 different feldenkrais things only plus gentle cardio. Everythign in teh "easy" zone, for those of us who can't fell easy from hard, do 1/2 of full range of motion.

interesting idea, going to try it out and see how it works. doubt it could make me feel worse-said myofascial release was OK cause you weren't stressng any joints, so I am going to continue with that.

Aslo, SuperJoyce has broken up with me again I am a bit sad over this, but just going to move forward with the feldenkrais guy and maybe some aqua therapy, not sure yet. I think she is frustrated at my lack of progress, and once again says she is only really providing maintenance. I was feeling bad at this last visit- I had clearly aggravated myself trying to do the little strenghtening I was doing, so I have totally stopped that, plus the thyroid was wacky again which makes everything bad....so, "i can't help you anymore" wasnt really helping me feel any better. BUT I am not letting it get to me, if she is done with me, then she is done with me, move on...!

(can anyone else hear the effexor in my attitude? wow!)

sooooo, no stretching for me, just gentle motions. such a change, i have been stretching 20-30 minutes a day 4-5 times a week for a long time.


ah well, still hot as ever here, lots to do as the little kids have a big halloween thing at school tomorrow, so I am off again...

gentle hugs to all and sweet dreams of sunny beaches with cool genlte breezes.

Johanna
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