Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 12-02-2007, 01:57 PM #1511
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My doc took xrays when I saw him 2 weeks ago...they didn't show any bone damage, so it could be (has to be?) soft tissue damage. For now, more meds and ice the knee every so often. yipeeeeee.
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Old 12-03-2007, 04:58 AM #1512
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Past three days have almost been entirely in bed, asleep or trying to meditate away pain.

I am wondering who here has had TOS the longest? I think I'll post it.
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Old 12-03-2007, 08:43 AM #1513
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Default Today I..

hope that it was a good monday for all here in the forum.

@dabbo:
I am sorry, that you knee-story is still going on. I know from my own experience that I cannot stand pain in other regions then shoulder/arm/head - what I am used to, but any other pain or handycap especially in the regions that fonctions quite normal. Wish you will know what it is soon.

@LinJane
wish you and your son a lot of patience to support the situation. this is not easy for every one! take care!!!

@jo
last week we had nearly the same white "decoration" and now a warm air came up this weekend and everything is green again. anyway, it is always nice to see trees,...turned into white.

@tamara
I am so sorry to hear you were so bedridden. I really wish you a lot of good meds and therapies to get relief

@Mark
I can understand how difficult it is when the computer crapps down - we are so used to it....hope you will find a new one to be connected again to the world, as you say.
wish you all the best against your pain - winter time is always hard for the muscles and nerfs and I hope you can get relief!!

All the best wishes and very nice greetings
Barbara
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Old 12-03-2007, 11:08 AM #1514
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Barbara It is always nice to hear from you. It is so nice to hear from people in different countries. It is just a shame that we are all suffering and going through the same problems.

We got our Christmas tree this weekend and put it up. We brought my son in his wheel chair and it was alot of fun. He was dying to get out of the house. He gets his staples out today. About another month for the pins.

I think I was bitten by a spider. My left elbow has swollen terribly and is red and hot. I'm going to the doctor in an hour. It started Saturday. I was going to go to the hospital but am sick of going there. I tried benedryl but it didn't help. It is like a never ending story around here. Always something!

Hope everyone has a good day! Linda
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Old 12-03-2007, 11:25 AM #1515
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LinJane - no,no,no - must go! Spider bites must be seen to be cleared because the wrong types can take too long to heal and actually kill tissue and cause gangrene or lymphodema. Look up lymphodema and see pictures and PLEASE get yourself to the ER or to a good doc and have them make sure you don't need some kind of med to counteract it. PLEASE. My mom ignored hers and it took like a year to finally get her finger cleared up.

Dabbo - hoping that you get some relief on your knee soon, and that the docs do something! YES, you can overcompensate and throw everything out of whack by having a bad knee for even a short time! I used to read reports on that! As soon as my high pain calms, I may call you to bug you to bug your docs to do something more proactive than what they are doing...

Thank you Edelweiss for your kind words to everyone!

Mark - Dday - are you back with us yet?

Much love to all.
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Old 12-03-2007, 12:56 PM #1516
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Linda,

SO glad to hear you have a Dr. appt today! Please let us know what they say!

Last time I walked around with a swollen, tingly and strange colored arm saying "must be an allergic reaction or a spider bite or something..." it actually turned out to be a blood clot, thanks to TOS.

Sorry, I just live in my own little blood clot paranoid world these days... I hope your okay!
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Old 12-03-2007, 07:49 PM #1517
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Thanks for your concern. I went to my MD and he didn't like the way it looked. It is red, swollen and hot. He sent me to a Rheumetologist who drained some of the fluid and sent it to be tested. I belive my life is going to make a great gruesome movie some day.

They put me on antibiotics and I have to go back in 2 days. I asked if this was something to be hospitalized for and they just said that they don't know yet. Made very sure I was taking the anitbiotics 4 times a day, RIGHT AWAY. Kind of scary. I am so tired of hospitals and doctors but you all know about that. I had been concerned about a blood clot because there is a hard lump in my arm. We will see! Thanks again! Linda
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Old 12-03-2007, 09:18 PM #1518
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Barb... I am up and running again thanks to my parents, they felt sorry for me... I am blessed having such support sorrounding me, including everybody here and I never close my eyes at night without acknowlegeing that in my prayers !

Shelly... Great seeing you around, don't be such a stranger!

Linda... You of all people should be aware of spider bites, sure your husband or one of the employees have been bitten crawling in dark damp places or in the vents anywho they are bad... well your son getting the staples out lessen the chances of infection now just have to keep up around the pins... this must be killing him being away from his friends. When you rescedule with Dr T let me know and we'll see about meeting for lunch or dinner be nice to put a person with the name .

Tam... hope you start feeling better, I miss those chats we have... it is amazing being able to share conversation with somebody going through some of the same things you are.

Dabbo... spending any time in Drs offices stinks!!! Anyone here surely would agree that we all spent way to much time at the doctors and it is no longer a choice... glad to hear that nothing is broken, than again as the old saying goes a sprain could be worse than a break I know I usually have a black cloud over me hope & pray this is not the case with you and may you heal quickly!

MOM... That sounds absolutely scarey...did you have surgery in the outlet region? I know you said about being on coumadin, until now I was unsure as to why you were taking it. Hope for your sake that is the end of those nasty boogers!

Jo... I agree with everbody else they are some great pics !

H/O... just checking to see how you are making out in the UK with the snow and foul weather... for the most part you are not used to getting that terrible mess are you. Unfortunately we see it at the least once a week till spring comes about!

Dawn... how's your breathing??? did it ease up any, if not is there anything they can do to help you out ?

Oh well this novell has taken me all evening to compose and great pain so I think I shall close at the moment... my deepest appollogies to anyone who I may have left out at this time, just because you were not mentioned does not mean you are not in my toughts!!! So until later

Mark~n~GOOBER
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Old 12-03-2007, 10:43 PM #1519
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Di and JoKat..... I hope you gals are doing well.... I don't think I've seen you post in a while, and hope everything is alright.
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Old 12-04-2007, 01:12 AM #1520
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Dabbo- crutches and TOS yak! I hope you are doing OK.

As for me, just lots of computer work assosciated with something for my daughter so I haven't had the stamina to be around. I am doing OK, still achingly slow forward progress. Actually, just not going backwards feels like progress...

hello to everyone and sorry I am not paying much attention righ tnow, I hope to be back sometime soon,
Johanna
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