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Today I
wish a good start in a new week to all readers!
The wedding of my cousin on friday was a full catastrophy: in the night from thursday to friday I woke up with a mega big migrain and at 03.45 in the morning I took three meds and I was dizzy but still in pain when I got up in the morning. We missed the train (was to 30% my fault because I was so slow..), the next train was 30minutes delayed, then the underground was stopped because of a technical problem.....we hurried in the hotel to change clothes and we arrived at the church 10 minutes before the final amen. +embarrassing+:eek: I am still in TOS pain and I am really happy that I can start with the cure on september 19th. I will be far away from all and everything for three weeks and I will receive a lot of therapies and dinner will be served and the room cleaned up everyday - as in a hotel. It sounds like holidays and I hope it will be like. I want to say to all here in this thread: I hope you are fine and feel better! All the best and nice greeting Barbara |
Today I
wonder what Edelweis means by the cure.
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Happy Holiday
Hi Trix,
I think it is the different language words, Barb;s is working toward getting better the word "cure" "fix" "better" "relief". Treatments to help, I bet. barb, so sorry to hear about the folly, but gal, to be hurtiing like you and even attempt to make the church is a wonderful try.. Did they have a reception you could relax at. Often when traveling and not a immedicate family member here in the states people opt to go to the reception fowlling the ceramony and they are folks without pain issues. I hope that you feel better today and find relief in the treatments to come. To everyone, Happy Labor Day long weekend. I put in time last week to go with the kids out of town this weekend. Back late last night and beat with tons of house work today to do. Appointments tomorrow, eye, attorney, doctor.....Busy week, My son has an IME again... Just wraped up De's case and now they are staring with the son. He has not filed for soc sec and has been off work since 2001, he had work hardening and return to work once but ended up with a fracture in the facet joint of spine from lifting a passanger. His weight restrictions form comp said he coould lift with assistance, well he couldn't. So really busy week. Be as well as can be, Di |
Barb/Edelweis...Erbärmlich zu hören, dass die Hochzeit so sehr hart auf Ihnen war. ...look dabei auf diese Weise wenigstens Sie haben gemacht es und mein bestes zu Ihnen!!!
Jo...I put a few links at the start of this thread, I think it will take a while till we all get everything right... I also opened a seperat Drs thread of Drs and PTs by state and country that I could come up withif any one can expand on it please do Trix.. Sure be nice if I could be of some use to you, hang in there, there are a lot of prople who have been dealing with this TOS monster longer than I and the biggest thing I founf out is never to give up!!!!!!!!! Grom... so mmuch thanxx for the encouragementand like you came to the point do not quit Dawn... my most sincere wish is that you never give up, we are here for eack other !!!!!!! To those members I left out, please do forgive me... it is starting to type the way itis.... UNTO ALL TOSers hang in there my thoughts and LUV go your way |
Today I..
am sorry that I use the word "cure" - but I want to explain what this means:
this is in a health ressort and you have to send a demand with your doctor to the "prevention center" of the social security and they allow you to go there. There is a amount of ca. 250€ to pay for the 3 weeks and the rest takes the social security and I will have a single room, all meals and the treatments during 22 days. For those who want to see where I will be (if you click on the english flag you can read the page in english):http://www.kurbad-althofen.at I have already been there and I was so satisfied and relaxed when I came back home. I wish you all a good day! Very nice greetings from Austria! Barbara |
Today I wish each and everyone who passes by this site a wonderful day!!
Barbara, gute Morgan.... as much as I fumbled about the inrtroduction into this clinic there were 2 word in Deutsch that I could not make out " Herzkatheder-Untersuchungen " pretty much so I get through reading all your Deutsch, however sure you always get a laugh out of mine !!!! PEACE TO ALL !!!!!!!!!!! Mark-n-Goober |
Today I feel, like a million bucks.... went to see DR Togut and after a ssemless number of trigger point injections, I feel somewhat normal again, wouldnt you know it they shut the water off where I live for upgrades to kick it in further with a warm bat !!!! ! He will not Call me with RSD as did Dr Sanrders out inin Denver, he Just calls it CSRP, though has recomeneded Dr Schwartzman in Piladelplia for treatment... I SURE LUV to Hate Dr T great individual and person.... I just nee ans want to get through stop one my bi-lateral surgery for TOS and tha than move on !!! Truly the man is to smart for his own good !!!! Good luck one and all!!!!
Mark-n-Goober |
What a Great Day.. I just got the phone call from my one Dr's office that they had gotten approval for surgery to repair my failed cervical spine fusion.. Which is now scheduled for Sept 23rd.. Happy Happy Joy Dance :D
Mark.. So glad to hear that you are having a good day today.. I hope it stays for a while.. I hope that everyone had a great labor day weekend.. ((Hugs)) Dawn ;) |
whew - I need to get caught up again and more have found this place too!
my harddrive took a crash or had viruses one or the other - so now all new drive and a new full antiv, spy, wireless protection -well soon i had to see how everyone was doing - LOL then I'll install and try to save some of my old info and email addys ect. hi to all Jo |
Today I
am happy to be catching up with some of my favorite people! Mark, I completely agree about Dr Togut! Just wish we could make him 20 years younger and clone him so one could have an office near me! Hate it that I only get to see him every 12-18 months :(
RSD is the same as CRPS, but CRPS is the newer term, stands for complex regional pain syndrome. Type 1 is the old RSD, type 2 is what was called causalgia, or RSD due to nerve damage. A lot of Drs still use the RSD term, but they are the same. Schwartzman is an expert in this field, and a referral from Dr T will probably get you in to see him fairly soon as they are colleagues, otherwise the wait is something like 2-3 years! He has a lot of experience with TOS patients who develop RSD. Dawn, that is GREAT news!! Jo, good luck retreiving your data. I HATE crashes, so time-consuming and v. frustrating! Wishing everyone low pain and a good night's sleep, beth |
TODAY I........
hope that the repeat fusion works out for you dawn, I hd C6-7 done app14 years ago, by a Dr down in Philadelphia, fortunate for me it worked out perfect. I did act as my own host for the plug vs cadavar, I felt less of a chance of rejection. Jo, glad to hear that you are up and running... I learned on my first system to have a reputable virus protection that runs at all times... plus I try and stay away from spam.... I guess if a hacker/spammer wants in, they will!!! beth, I do really like Dr T. , all I am saying is the RSD dx seems to be accepted more readily aand may help in me getting a jump on my benefits... though wish I never heard of TOS, RSD, CRP...let alone live it ;) As far as Schwartzman is concerned, I am just holding my own with money as it is let alone another Dr bill!!! Unto all, my wish for a good and pain free day follow each and everyone !!! Mark-n-Goober |
Today I..
don`t have much time to type...so just a short but loud "HELLO" and I hope you are all having a good, sunny and painfree day.
Barbara |
Today I...
Want to say Hello to everyone..
Mark, The last surgery I had for my fusion took a cadaver bone.. Which didn't work so the Dr wants to take the graph from my Hip... How did you do with that.. And how long did it take for the discomfort of the graph site to ease up.. I know they say that the graph is more painful than the cervical surgery itself.. I'm just getting the jitters about that..:eek: The surgery is no big deal since I have been through it before and know what to expect.. Just curious what the other is like..:confused: I hope that everyone is having a good day and that everyone is comfortable and having a low pain day.. ((Hugs)) Dawn ;) |
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Unto all passing by, my wishes for a good day! Mark-n-Goober |
Good luck Dawn......and to everyone else "Good Afternoon" and best wishes.
Though today I.............am really suffering as we have decided to reduce meds and see which seem to be effective and others not...because side effects are knocking me about....have more pain and really fed up..taking all energy to do this (Dragon through a wobbly. Also had SIJ injection..Ok but site is sore!! Just want to be back to my pre self and do tings I used to instead I am tethered to oxygen, breathless and hurt. Now I am giving self kick up a*#e as I am not the only one suffering and know people worse off. Please accept my Today I am P"##*d off rant. Hx no more typing for a while so will look in but may not join in.....sorry |
TODAY I>>>> have to say to Horizontal One, Yes there may be people worse off, but are they living in your shoes ??? It is sad to say, pain is pain regadless mental, physical or trumactic. That is why we are here to share with one another and try and help each other!!!!!
MY HOPES FOR A PAIN FREE DAY!!!!!!!!! |
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Mark-n-Goober |
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My heart just aches for you.....You've been through so much and I hate to hear that you're going through so much pain and I think you have every reason to come here and vent because all of us here know that you're not one to just come on here and complain all the time. You've always tried to stay upbeat and you always encourage others and I think that all of us admire you for that. Yes, there are people much worse off than all of us but that doesn't make your pain any less important to you. I'm hoping that you can get through this hard time and will feel better soon. |
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I know for one I would rather not be over here, but who else understands what we live with day-in-and-out than us who the beast has reared its ugly head !!!!!!!!!! MY best to all !!!!!!!!!!!!!!!! MARK-n-GOOBER |
Today I.......was wondering if anyone else suffers from the flexor nerve/muscle problem where fall asleep with your arm straight the last three fingers curl up and you need somebody to bend your arm and staighten it out your fingers, or yourself slowly because the pain from fingers to neck make you dizzy????
Just a question in the whole scheme of life itself............:confused: MARK -n- GOOBER |
mornin' all- well west coasters anyway - afternoon to east coasters- and hi to everyone else -- LOL
Mark- I found a few mentions about - I think it's termed "claw hand" or clawing??? googled this - site:brain.hastypastry.net claw hand click on the cached versions to get the info we can use this same search and change the topic or a name after the .net part to get to some of the old BT1 info [The way PT explained it to me, if the tendons start to tighten, it can pull the muscles. My tricep and biceap are "shortened" so I cannot straighten my arm all the way. I have tendon glide exercises I do with my hands, so my tendons in the hand don't shorten and I don't end up with a "claw hand." Look online googling for "physical therapy" "tendon glides" and leg. Do some of those to keep the tendons limber. It's VERY important to do them.] [ Not a TOS expert but I've had two trigger fingers, where they bent down, particularly at night, and I had to pry them open in am, fixed with injection of steroid and lidocaine. Neither ever came back. Sometimes it is from a problem of that particular tendon not gliding properly on it's path. Alot of these weird hand things are coming from nerve involvement in your/our cervical spine. Hand problems are quite a bother aren't they. I find that with time, my fingers have all gone to a natural position, flexed inward a little - can't lay hand flat on table, no biggy with me at this point. phoebe phoebejane [Old 09-22-2005, 07:37 AM You brought up a good issue here with the fingers bent in... my middle, ring and pinky all are closed and to straighten them out actually hurts in my forearm. I also would like an answer as to why this does happen... I know my EMG said something about slowing in the ulnar nerve, however unsure if this could be part of the cause! God Bless and Good luck! ~~~Mark-n-Goober~~~ __________________ Old 09-22-2005, 10:12 AM phoebejane very likely the cause, although the orthopedic surgeon who did my carpal tunnels and injected trigger fingers, said no, but that was AFTER I'd had my surgery, he ran such a busy, busy clinic, and never had time to talk to me. After my injections however, I was fine. ---------------------------------------------------- I think others have this too I think that's why curldfingers picked it for her name and some others mentioned it also. you might try doing a search for that with the "search this forum " feature above the list on the main pages. if I recall it can be from the nerve irritations sending a wrong signal to that nerve. tells those muscles to contract. But I'm not up on any details of it - haven't had that issue. you could try a google type of search too. -------------------------------------------------------- The "official" name for this is claw hand. Search for it in Google and add the name of the nerve affected. It is often a bad nerve that paralyses the small muscles and that paralysis produces contractures which pull the fingers into these positions. If you have tendon problems that show up in similar ways, it is not quite as bad as there you can get rid of it with exercise and patience whereas if you get it from a pathological nerve, it is much more difficult. An interesting description of all sorts of nerve injuries is here: http://www.studystack.com/studytable-10342 click on "show all" to show them all. And another good site with pictures showing the effect of ulnar nerve palsy: http://mywebpages.comcast.net/wnor/c...iderations.htm ---------------------------------------------------------------------- hope some of these help- there's more info out there- but I've been on the computer way too much this last weeks when it has been trying to crash and now done did it - and now rebuilding & resetting up my info. if anyone wants a link for kubuntu - a easy Linux operating system let me know. I can boot from winXP or Kubuntu still have to work out my wireless connection for Kubuntu - doesn't see my wireless card |
Wow, what a beautiful morning it is here in So California..
Thanks so much Mark for sharing your experience with the bone graft.. It helps.. My Surgery date for my fusion repair was pushed up to the 22nd.. So less than 2 weeks to go.. :eek: I had to stop my anti-inflamatory medication yesterday so I'm not looking forward to the aches that will come from that...And today my head feels like I have a vise closing in on it.. Ugh..:( I hope that everyone has a pain free weekend.. ((Hugs)) Dawn ;) |
TODAY I........
Have to say thank you to Jo on the links and info she provided, hopefully it not only aids me, but also others who are going through this! Once again this moring bending my arm after sleep with it straight caused great pain bending it, but was able to do it with out waking my wife :cool: I know you will do just fine Dawn with your surgery.... there are a lot of people ove here pulling, thinking, and praying for a quick return in health for you:) Dawn to be exact it is the illiac crest (top of the hip) where they take the bone from. If you are into vanity, you may want to check with your Dr what and when you can start applying something like cocca butter to this site to help not scarrring, me I just look at it like another part of me:D Read back in this post and would like to remind BOTHRed and Horizontal One, that this forum is not always here to share or talk about the good things in one's life (though that is always a nice thing when that happens) but also a place to come and vent to others who live like we do!;) Was nice to see some of the regulars from BT 1 moviing about like Law, Krankiegirl, Tam, Gromlily, Edelweis, DiMarie, Beth... some new people like Orthomolecular, hairdresser, Bobbi.... so sorry if I missed anyone, and if I did please do by all means pop by and say Hi or if you know anybody from the old boards that need a hand moving over here please do help them find the way HOME I was wondering if anybody knows of a way to move a Post over here to the top so that when others come about they see it first.... I do beleive That Drs list that I created should always be on top as well as "Useful Sites" started by Bobbi. Personally I think Churchgirls Doctors list was more inclusive than what I could dig up, but trying to share tried and proven doctors and that was all I could come up with! I pass along a bit of extra hope for DiMarie.... had a personal E-mail from her and at the moment her life seem to be in a bad spiral downhill fast, truthfully I do not know how she handles some of the things she does! am highly upset with my bank.... they put a freeze on my account due to lapse in child support *(which my support officer knows)* once I get things straightened out my guys will be taken care of.... Kind of hadr considering I have had no income since 10/10/05 and WC is pulling delay after delay! Well when we were told there was a freeze on the account the banks rep said they would cover all checks till things were straight! NOT we have been getting service charge after service charge from the checks we had out before we knew there was a hold on the account! We always had a good credit rating and I always paid above and beyond on my support!!! Even though I am sure she used the money elsewhere.... infact, whne my guys come down, they do not bring a change of clothes, I always purchased a wardrobe for them here!!!! Oh Well.... need a time out fingers and left side is starting to hurt hope to hear back in the mean time as it rests !!! From Mark-n-Goober, we wish all a good day !!!!!!!!! |
I am so sorry Mark that you have to live through this stuff.
The stress will kill us if the TOS doesn't, huh?! Hang in there for all of us, though, please...but it is so wrong of work comp to do that to you. Sympathy - empathy - love your way! Tam |
Dawn good luck with you upcoming surgery.
My son nearly had to have a graft when he shattered his wrist- but dr was able to use many pins after all. Dimarie - I hope all gets smoothed out soon , you have such a full plate- we miss you here. Mark - fees and bills - grrr--- It's almost like that old saying about death and taxes! my vent - found out my WC atty "fibbed" or was incorrect , when he said I could submit my left over bills to my pvt ins carrier.. they did pay some of them but when the big PT bills showed up ---they declined I appealed the decision and got a letter with an enclosure of the policy- they do not cover any work injury bills - but as a courtesy they will not ask for repayment of those that they did pay. well at least that is a break. so the next step is to see if it goes to collections?? and if they will negotiate for a lesser amount. wittesea has found links to the drs list {cached} I copied all the info from them to both of my sites. http://forums.delphiforums.com/TOSRSI/start http://pub36.bravenet.com/forum/3018365670 or you can ask docjohn to make a sticky for a Drs list and we can get them all in one place. |
Today I.......
Ask all to take a few moments of their day to remeber those who went down by the hands of the radicals ! Also to think about our people in Afghanistan and Iraq, who are there trying to quell any further acts of faceless destruction ! Also I ask those in the US to Fly the colors of the flag, in support of our people over there and the dead, fallen and wounded!!! Mark-n-Goober |
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This is an extremely sad day for our country and it's hard to sit and watch all of the tributes that are on TV today and also the video tapes of that day- the planes hitting the buildings, the twin towers collapsing, people jumping out of buildings, people who were covered in ashes leaving the buildings, the plane crash in PA, and so on.....It's hard, but we NEED to watch this over and over, so we don't forget....We need to remember the police officers and fire fighters who lost their lives trying to save others, and our soldiers that are fighting and many of them losing their lives, for our freedom- which also includes freedom of speech. We need to remember that things have changed forever and there are people in this world who would like to wipe us off the map, along with any other country that is different from them, and they would do this without a second thought- we need to pull our heads out of the sand and realize this..... I have to admit, I'm stunned by some of the things that are being said on forum feedback on this very subject, but I've just stayed out of it. We do all have the right to say what we think and to have differing opinions and hopefully we can allow others to have a different opinion without attacking them or their opinion. But, no matter what we think about the war or our government- and while this country isn't perfect, it's still a wonderful place to live, otherwise why would so many people across the globe be trying to come here to live? And I thank God that we have the right to say what we think and live in freedom- because in many of the countries in this world, people aren't allowed the freedom to say what they think- especially if they're criticizing their government. I support our country, I support our president even though I don't always agree with everything he does, and I support our troops who are dying for us to have the rights we have. I hope I haven't offended anybody- this is just my opinion. |
Boy it brings back a lot of memories- I was at work when 9/11 happened - so fast we all changed to the same radio station and turned them all up .
everywhere we walked we could here the reports - not too many scopes built that day. many of us even on the west coast were in shock at the news. on another note- since my hard drive died - I lost my email addresses from those of you that I had- and no I can't remember them - braindrain LOL so please send me a PM or email with your email addy- I think it would be nice to have everyones - in case of anymore BT1 or BT2 crashes and my websites are listed in my post before this one {bookmark /favorites them}- so you can always post or message me there too. |
TODAY I....
have to tell Jo, that it isno problem handing out my E-mail Address..... DDAYMBB@aol.com all I ask is to include in the heder who you are and that you are from BT! Hope today will be a better day than yesterday for all:) Mark-n-Goober |
Today I
apologize for not writing the last days. I had a lot of things to do, and my arm hurts, so I didn`t want to type more than I have to at work.
I read all your posts - so I am up to date what happens. Just want to wish a good day to everyone!:) :) :) Very nice greetings Barbara |
Today I
it is me again!!!
I have had some ear problems the last weeks and yesterday I saw the ear-doctor and he told me the ear is ok, the problems come from the cervical vertebra. He asked me, if I had some difficulities with the cervical vertebra but I didn`t talk him about TOS, I just said I am happy that the ear is OK. So far the latest news! I wish you all a painfree day! Barbara |
Barb,
Is it not funny (strange) in a way that TOS could affect so many different areas? Just glad that all worked out for you in the long run ! My hopes to all is a great painfree day without troubles or incident!!! Mark-n-Goober |
Today I...
Want to wish everyone a quick hello and a wonderful and painfree day..
((Hugs)) Dawn ;) |
TODAY I.....have to make mention it wa nice to see somebody else find their way here.... ROZ, although now she is going under the username of Buckwheat.
Wonder who ever made up up the work comp system... seems as though I have been placed in the center of a spining tub ! Their side came up with a witness who said I was no where near my truck when it rolled, though when she gave her depo I was no where near.... it was the customer who I was delivering to and I would have really liked to look in her eye when she gave this testimony! I wont get into the whole scheme of things, but there is no way I could have made it out of the truck on such an angle and been at the side of her house when it rolled, second of all, it requires someone to add air to the brakes (letting off the parking brake) for it to move thus me in the cab... regardless, I am in need of closure on WC before I lose it... MORE THAN I AM ALREADY :D ! Hope the day is good for all that pass by and if you feel inclined feel free to pass along a HELLO :) Mark-n-Goober |
I'm checking to see if i can get a message through
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Yeah!!! let me jump up and down....I have soooooooo been going through withdrawal not knowing where to find everyone.
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Today I
am happy that sandy found us! welcome!
In the afternoon I will go to a "sweet festival" downtown - there will be the longest "Apfelstrudel" and different chocolate maker, etc... the programme sounds quite good. And sweets alway help better than meds - with me! I wish you all a quiet weekend and no pain at all. Barbara |
Today I
want to say to Mark: NEVER GIVE UP!!!!!!!!
All the best!!! Barbara |
Today I.....send Mark a big HUG...
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Hi Mark
Thinking of you....hope things get easier soon.
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