Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 07-31-2007, 08:51 PM #971
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Barb... keep us posted if you can if not know you will be in our thoughts and we will await your return !!!
My best to all... sorry still can not sit up for any period of time without my ears starting to ring, so minding my P's-n-Q's until later everyone !!!! Mark~n~Goober
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Old 07-31-2007, 09:29 PM #972
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barb- goo dluck and have fun!!

Mark- glad to know you are hanging int here, can't wait for you to feel great-

dabbo- i am with you, a true camper. my biggest disappointment re: TOS is knowing that i will not be able to carry a backpack. i once took an 8 day trip from the west side of the sierra to the east, culminating with the top of Mt whitney. ah, those were the days. glad i went to do it when i had the chance.

linjane- have fun with the cards and your daughter- they do help you to forget...they're so sweet and cute

happy night to all, i am off for family dinner with the food throwing maniacs that are my kids...keep your fingers crossed for my dining room walls tonight- lasagna!!!
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Old 08-01-2007, 09:42 AM #973
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Heart humbled by thanks

hi to all,

I am really a lucky person to have such a great support here and I say thanks to all for being here and sharing the go fish games and the camping and pain and family and life.....this is why I feel I know you, you share your good bad and ugly here and we know how to help and talk to each other.....my life went from feeling insane to ok I am not insane......because of here!!!!!!!!!!!!!!!!

Love you all
Victoria
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Old 08-01-2007, 10:59 AM #974
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I know Victoria, it does help to know there are others with the same, and sometimes very different problems. By the way, we tied in go-fish. She's getting good though. We try to have a family game night. We play poker and everyone wears sun glasses, even the little one. We'll see who wins tonight. Linda
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Old 08-02-2007, 12:16 AM #975
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glad to read all, Mark glad you are posting and doing Ok.
Hey JohannaKat...how about a belt, with a bungie cord to a rolling back pack...Or I could let you borrow my rollator walker taht climbs rocks and cats,

Going on a job interview tomorrow, It will be in addition to the casework I do. It is an advocate for children with ADHD, Aspergures, beahvioral problems. I will be the person overseeing so no cracks to fall through. From the pediatrician, to teachers, to aide adn special classes and home.....

With all I ahve seen and been through don;t know of much that could surprize me in life. The most probmatic cases at work are referred to me and my supervisor says work your magic!

It si in God's hands if it si right. The pay, the hours,
It was nice when the head called me today to set up an interview if I was still interested had a voice you use when speaking with coworkers over coffee. Not progfessional to the point, but a nice voice. I don;t know if it is her personality and loves this work, or she was impressed with my resume and looking forward to meeting me, but I liked talking to her.

I hope it is meant to be to help with income to the home. But, not over do my body....
I do want to keep my job though....I love working with these families. Some of the cases I have, 90% Iare so bad, still with us a year later. Two are in jail, one recently got out and never saw the little girl.

Sorry for not fixing typos, I better get the dragon out and go downstairs when on the puter to save my self...
OH we may have a heat wave Mark, three days about 90* finally!!!!!
love yo you all
di
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Old 08-02-2007, 12:41 AM #976
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Oh DI I hope it works out for you- how rewarding to be able to do the work you do- I think you know it- it seems to come through in your posts that you get satisfaction from providing this special service to families who need some way some how to get time together.

as for backpacking, i think maybe a llama will eventually be my solution

vic and linjane- to know we are not alone in the world is all important. THANKS for being around for the rest of us.

nite nite all,
sweet dreams (though i know none of you will see this till tomorrow!)

Johanna
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Old 08-02-2007, 09:04 AM #977
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DiYou have always been around to help. When I had my surgery in 2000 you were there for me on the site. I was in PA for about 7 days and I knew if I needed someone, you were there. If anyone is qualified for the work it is you. I am sure you will get the job.

As noted, the east coast is having a heat wave!! Hooray!! My husband and I own a heating and air conditioning company so this means broken a/c and my guys working and hopefully making money! This is what we count on is a busy summer. Today I think I will do nothing. I worked my tail off yesterday and am paying for it today. Atleast got in the hot tub last night. That helps alot.

Linda
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Old 08-02-2007, 11:06 AM #978
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Unhappy Joyce is kicking me out

OK, so I am trying to come to grips with this...but yesterday, I think super joyce might have very politely labeled me exercise intolerant.

she told me that since i had my range of motion back that all she was doing was helping me maintain what i had- and that what i needed was strengthening, but that clearly i could not just go to the gym because my body didn't seem to be able to handle that. She has tried to give me so many different exercises modifying them to accomodate my weaknesses, and i just can't seem to do them, even gently, without really wrecking myself.

she didn't kick me out the door, exactly, but she wants me to leave her and start seeing a PT who is a feldenkrais practitioner

i am not taking this news very well. the 'there isn't any more improvement to get,' and 'learn to work with what you have' part, basically. i was really hoping there was going to be more to do for my back...it still hurts so much every day

we had talked about the feldenkrais guy before, and i guess i just assumed that i would continue to see both of them.... but that doesn't seem to be what she has in mind.

I have been trying to figure out since yesterday why this is bothering me so much....and I think it is that i have just put so much faith in her, she the only doctor or practitioner that i have simply trusted outright- no questions asked. There was some real mental relief associated with that that I am not prepared to give up trying to figure out if I can trust someone new.

anyhow, just venting. no one here (at home) really understands why i am so dissapointed about this, but i thought maybe you guys could.

got to get moving and take francie for a docs appt....so i'll have to check in later.

Shell- if you get a chance to check in today i have been thinking about you but since my in-laws got here yesterday i haven't had a second to think...but I hope you are hanging in there and comfy at home by now


later everyone

Johanna
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Old 08-02-2007, 11:38 AM #979
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Johanna--

So sorry to hear your news. I know that must be very frustrating and heart-wrenching for you. As much as we've all been through, going from Dr. to doctor, and practitioner to practitioner, one after the other and when you can finally trust someone... it's so hard to lose that person. Try to continue doing some exercises on your own... things that she is taught you and shown you during your time together. There's an old saying that friends come and go in our life some stay for a long time, some only a short time but each serves his purpose in our lives. Don't look at this as the end, there is always room for improvement. Paraplegics have walked when the doctors said there's no hope, and the terminally ill have survived. I believe in you, and we're here to support you. Don't ever give up on yourself and always keep on trying.

We all love you very much!


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Old 08-02-2007, 11:41 AM #980
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Johanna... I hope everything works out well with your PT dilema , maybe you can get the best of both going for you!

Victoria... the true way to maintain sanity is through insanity , or just saying what the hey and going for it!

Di... best of luck with your venture, hope politics do not play a factor God knows how our local system works!!!

LinJane... the company I drove for did HVAC and I did some installs for extra bucks, those poor buggers crawling around in the attics... than again it is their gain as well as yours when busy sounds like we might have another two weeks of this warm, so try and take some time out to relax

Got my staples out today (yeah) still the site on my back is very itchy and try and scratch with TOS **right**. Still taking all my oral meds, my pump is only ddripping, enough to keep the line open.. they are going to start turning it up next week and weaning me off my other meds (scarey).
The ring and headaches are finally gone, however not over doing... no bending, stretching, driving etc... I am fortunate to have a supportive wife that helps me through and when needed spanks me (OK verbal reprimand LMFAOROF)!!!

Enough typing going numb so wishing all well and hoep soon will be able to sign off without the addition of the bastard **GOOBER **

Mark~n~Goober
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