Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-13-2010, 12:05 PM #1
Nolina Nolina is offline
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Nolina Nolina is offline
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15 yr Member
Red face I get this too!!!!

Yes I get the exact same thing - I didn't know anyone else got it, too!! i get it mostly at night while lying in bed. It makes it impossible to lie still or get comfortable. When I tell my doctors about it, that is exactly what i call it - Restless Arm Syndrome - because that is exactly how it feels. Finally a Sleep Doctor confirmed that technically both are forms of "Restless Limb Syndrome", it's just that it is far more common in Legs and so hence the more common name.

I have tried Mirapex (typically prescribed for Restless Leg)...it seems like it may have worked some, but i never got up to an effective dose because of side effects (headaches). It may be worth a try for you. I have noticed that for me the Restless Arm feeling definitely seems related to times when i "overdo it" with the arms. Taking extra pain meds at night does seem to help calm them down. They have particularly been better since I switched from Fentanyl Patch and Percocet to Kadian (time release morphine) with morphine sulfate (short acting morhpine) for break-through. In fact, I'm finding my pain relief and my sleep have improved all the way around since switching to these meds.

Good Luck - i know that restless feeling makes it so hard to get any rest.
Hugs,
Nolina
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trixlynn (02-13-2010)
Old 02-16-2010, 11:23 PM #2
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Default restless limbs

i have never had restless arms, but what helps my restless legs is
1. no alcohol
2. no antihistamines
3. do not sleep on back, but if it is necessary, elevate the head. i have a wedge i used when i broke my shoulder. some people use recliners.
4. no antidepressants. they don't work if they deprive u of sleep anyway
5. hug on the dog

i have heard that synthetic fabrics cause it too, so you could try cotton pjs and sheets.
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