Hi Martha,
Welcome to the forum
I hope you find help that you need herewe are a great bunch of people. I can help you find medical articles should you need them to help to educate your physician.

It took me two years to find the right Doctors as well. My ordeal was horrific especially with the workers compensation board here in Ontario. Because I got a diagnosis of thoracic outlet syndrome the compensation board immediately denied me and it took me three years of fighting with the help of my union to get the pay I deserved.

I saw a vascular surgeon who did a first rib resection and scalene muscle removal. I had complete success until about six months after surgery when my physiotherapy increased all my symptoms recured and I am again suffering with major pain and neurological symptomology.

Please ask for help when you need it we are always here to help you.

I do hope you find us to be the help you need !!!

With love and hugs,
Victoria

Hi Martha,
Welcome to the forum.
Both Dimarie and gibbrn offered up some excellent comments.
Soon you will be more informed than most of the people treating you and be careful with what you do because even if you feel better something can set it off all over again.
I was diagnosed with TOS but I also could have shoulder and neck problems that create the same symptoms.
So don't freak out about TOS yet because it could be something else. Do your research and ask questions.
Also it may be helpful to keep a journal or notes of what hurts,how bad, how often, and when.
I wish I would have done this because sometimes before or during exams I felt good and had some difficulty explaining my symptoms on the rare occasions that I felt good for a day or two.