What type of testing has everyone had who has vascular and or arterial TOS?
Venogram?
Doppler?

Hi,

I had a venogram. But it was in Denver with Dr. Brantigan. I had one in my home town but then he wanted one done HIS WAY. He has designed a protocol for what he needs in the test with the radiologists there. One "fill-in" radiologist who hadn't worked with him before did it and proclaimed I didn't have TOS! Well.......I had to have another test done the next day the "right way" with one of the regular radiologists and it clearly showed up that I had complete arterial and venous blockage in certain positions!

So make sure they know how to test for TOS!

I have had a veinogram and a doppler ultrasound of the brachial plexus vessels.. I had no blood flow on the doppler the guy had to go out of the room for help he had never seen it before!!!!

The veinogram clinched the surgery for me....it showed over a 90% occlucion on the right side subclavian vein so it was why I had my surgery to correct this issue....I think it is still there as all my symptoms are back.........

anyhow good valid test to see about your blood flow, but make sure they put you in provocative positions...ie the superman test...arms overhead like you are flying.....and arm in weird positions....the ones that cause you problems...

best of luck love and hugs,
Victoria

I had 3d cat scan in Denver that showed artery and venous TOS.

Hi,
Check this out, for subclavicle artery compression.
http://www.circ.ahajournals.org/cgi/...ll/112/17/e280

Also vertebral artery that never seems to come up.

http://www.tos-syndrome.com/newpage12.htm

I hope you don't have this vascular crap going on. My goodness you have been through so much. Hugs, Roz

I have had two doppler ultrasounds...the first gave indication of TOS as per the report. The second, the woman who did it went...'woah that was weird, the blood flow stopped and then just started again'.

Gibbrn is right - unless they put your arms in those nasty positions the tests can be all over the place

bumping for new member