Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 08-03-2010, 04:53 PM #1
jfeltman jfeltman is offline
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Join Date: Aug 2010
Location: New York City
Posts: 4
10 yr Member
jfeltman jfeltman is offline
New Member
 
Join Date: Aug 2010
Location: New York City
Posts: 4
10 yr Member
Default Also new and freaking out

I've been reading these posts for several weeks now; I keep thinking that I should stop because it makes me crazy, but by now I've come to accept that I have TOS even though I haven't been actually diagnosed. I spent several weeks on an old pair of crutches (still haven't read anything about crutches causing it) on the thinking that I wouldn't need them for too long. Several weeks later the symptoms started in my hands (I'm a musician, so I'm particularly sensitive to that) and have now spread into my chest, primarily. I've come to accept that I may never play again, but I can see that the possible prognosis is actually far worse. I live in NYC, single and alone. My parents (my only real support network) are in CA, and all I can think about is the shame of moving back there if this disables me. I'm also feeling amazingly stupid for having caused this to my own body, and I have no idea how I can live with that starting at the age of 36. Where will the rest of my life go?

I could use a bit of help. Sure, I have medical questions but it's more how you all have survived this and lived your life. I'm just not sure I'm strong enough to do that sometimes...
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