Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-03-2010, 07:02 PM #1
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TOS Gerl TOS Gerl is offline
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Join Date: Sep 2010
Location: Northern CA
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10 yr Member
TOS Gerl TOS Gerl is offline
Junior Member
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Join Date: Sep 2010
Location: Northern CA
Posts: 39
10 yr Member
Talking New here, but not new to TOS -upcoming surgery questions

Hi! I have been lurking a while on different boards.. and decided to join here, as I will need some support and friends moving forwarded. I will try and not make this super long.....

have had TOS Almost 3 years, I didnt do the Dr shuffle so much, after 2 shoulder surgery's My should was better but my tos symtoms never went away.
My shoulder Dr sent me to see Dr Avery in SF (this is all WC) and Avery sent me to see Peter, get the TOS MRA, get the brace, PT and my Tens unit, pain meds and nerve meds I have been doing this all for 10 months now.... and Im only getting worse and worse. My arm turns blue and purple the swelling is horrid and we all know about the pain... I went back to see Avery, and I knew it was coming.... Surgery... and at this point in the game im pretty much ready to have them just cut the whole arm off.

Dr Avery spent 2 1/2 hr with me covering all the complication and risk, and I signed all the paperwork... now more waiting, waiting for work comp to approve...

So Im asking you: Give it to me... The good the bad, the worst the better... I know its going to suck... buy I'd really like to chat with a few of you that have had this done. I do not have an extra rib, I do have TOS on both sides my dominant arm is the only one with problems, my Artery is involved only when moving my arm away from my body "tiger ally" measures 7.2 (per Dr pretty bad, done on bone) wants to remove 2 neck muscles and 1st entire rib, will also have a neroligist in surgery to test the nerves during the operation...says about 6 hrs 5 to 10 day hospital stay in SF.

Thanks Fellow TOS peeps
TOS gerl

Last edited by Jomar; 09-05-2010 at 12:18 PM. Reason: name updated
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