Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Old 09-03-2011, 11:47 PM #1
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Smileymichelle,
I placed a copy of your post on the main area of the TOS forum, so more members will see it and reply
- here is the link to it-
http://neurotalk.psychcentral.com/thread156590.html.
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Old 09-25-2011, 09:39 AM #2
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Dr. Donohue at MGH Boston has been great thus far. He met with me for an hour and a half for my consultation, and he has been very responsive over the phone as well. Dr. Donohue is a cardiothoracic surgeon but has told me that he does not want to do surgery before ruling out all other options. As a single 24 yo working to pay back extreme college loans, I appreciate that he does not want to do surgery yet, if at all.

Catherine Wee, an OT at Spaulding Rehabilitation Hospital, was also fabulous. I saw her for several appts, but my condition continued to worsen. She is down to earth and compassionate. When I had been referred to other doctors around the Boston area, she called me after a couple months just to check in - I really like her, but I'm just not in a place where PT is helpful.
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Old 10-24-2011, 12:09 AM #3
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Quote:
Originally Posted by ladylaura418 View Post
Dr. Donohue at MGH Boston has been great thus far. He met with me for an hour and a half for my consultation, and he has been very responsive over the phone as well. Dr. Donohue is a cardiothoracic surgeon but has told me that he does not want to do surgery before ruling out all other options. As a single 24 yo working to pay back extreme college loans, I appreciate that he does not want to do surgery yet, if at all.

Catherine Wee, an OT at Spaulding Rehabilitation Hospital, was also fabulous. I saw her for several appts, but my condition continued to worsen. She is down to earth and compassionate. When I had been referred to other doctors around the Boston area, she called me after a couple months just to check in - I really like her, but I'm just not in a place where PT is helpful.
Hi LadyLaura,
I am a patient of Dr. Donohue as well - he was the one who finally did the right imaging and confirmed I have compression in my thoracic outlet. He recommended a scalene Botox injection for me but we're still working on getting insurance to approve. I too have been really impressed with Dr. Donohue's approach - he seems genuinely interested in helping deal with this condition and was really thorough in our consultation. Best of luck to you!
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Old 11-27-2011, 08:57 PM #4
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I have read this entire thread and may have missed it accidentely but I saw one doctor listed that someone recommended for a VTOS/ATOS surgeon in New York.

Id think since New York has such a high population and is very well known for their good doctors that im not sure why I am having such a difficult time finding a fantastic doctor her In NEw YORK. Anyone recommend any? Thank you !!
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Old 12-01-2011, 03:41 PM #5
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Many of the state by state listings were compliled in 2006, a few have been updated when new info was mentioned, but not many.

There really should be some new Drs and surgeons coming along - we hope!

Please add to this list if you do find some good ones.
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Old 10-02-2012, 06:11 PM #6
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Originally Posted by Scaredsilly View Post
I have read this entire thread and may have missed it accidentely but I saw one doctor listed that someone recommended for a VTOS/ATOS surgeon in New York.

Id think since New York has such a high population and is very well known for their good doctors that im not sure why I am having such a difficult time finding a fantastic doctor her In NEw YORK. Anyone recommend any? Thank you !!
If you google best docs for thoracic outlet syndrome surgeons it will bring up NYU with several docs.

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Old 10-02-2012, 10:35 PM #7
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If you google best docs for thoracic outlet syndrome surgeons it will bring up NYU with several docs.

irisheyesmilin
If you look at Parbies thread : My TOS Search on the East Coast-She saw several Dr's in NY but did not find a good one in the City. It is pretty hard to beleive but they are spread out all over the country.
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