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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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#1 | |||
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Co-Administrator
Community Support Team
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Smileymichelle,
I placed a copy of your post on the main area of the TOS forum, so more members will see it and reply - here is the link to it- http://neurotalk.psychcentral.com/thread156590.html.
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#2 | ||
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Member
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Dr. Donohue at MGH Boston has been great thus far. He met with me for an hour and a half for my consultation, and he has been very responsive over the phone as well. Dr. Donohue is a cardiothoracic surgeon but has told me that he does not want to do surgery before ruling out all other options. As a single 24 yo working to pay back extreme college loans, I appreciate that he does not want to do surgery yet, if at all.
Catherine Wee, an OT at Spaulding Rehabilitation Hospital, was also fabulous. I saw her for several appts, but my condition continued to worsen. She is down to earth and compassionate. When I had been referred to other doctors around the Boston area, she called me after a couple months just to check in - I really like her, but I'm just not in a place where PT is helpful. |
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"Thanks for this!" says: | Iris (02-02-2013) |
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#3 | ||
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New Member
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Quote:
I am a patient of Dr. Donohue as well - he was the one who finally did the right imaging and confirmed I have compression in my thoracic outlet. He recommended a scalene Botox injection for me but we're still working on getting insurance to approve. I too have been really impressed with Dr. Donohue's approach - he seems genuinely interested in helping deal with this condition and was really thorough in our consultation. Best of luck to you! |
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"Thanks for this!" says: | Iris (02-02-2013) |
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I have read this entire thread and may have missed it accidentely but I saw one doctor listed that someone recommended for a VTOS/ATOS surgeon in New York.
Id think since New York has such a high population and is very well known for their good doctors that im not sure why I am having such a difficult time finding a fantastic doctor her In NEw YORK. Anyone recommend any? Thank you !! |
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#5 | |||
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Co-Administrator
Community Support Team
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Many of the state by state listings were compliled in 2006, a few have been updated when new info was mentioned, but not many.
There really should be some new Drs and surgeons coming along - we hope! Please add to this list if you do find some good ones. ![]()
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#6 | ||
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Junior Member
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Quote:
irisheyesmilin |
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#7 | ||
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Member
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If you look at Parbies thread : My TOS Search on the East Coast-She saw several Dr's in NY but did not find a good one in the City. It is pretty hard to beleive but they are spread out all over the country.
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