Interesting case... If myolitic procedure can give permanent atrophy, it can help many of us.

What vascular symptoms do you have ?

How do you got tos ? .. scar tissue is only perineural in RSI TOS i think.

I can't use my arms and hands at chest level or above, or they become dead and numb. If I'm flared up they become dead in any position. I also can't use my arms away from my body, unless they are supported. Even then, I have to keep them lowish, or they get puffy and numb.

As far as how I got it, it was an RSI, but that RSI came 10 years after an MVA whiplash injury to my neck that I had long recovered from, but I supposed might have contributed to my developing TOS. I didn't have arm and hand symptoms until 10 years after the MVA, during a time when I was working 60-70 hours a week with a terrible set up, and I had steadily worsening neck pain, and then suddenly all the vascular and nerve symptoms came on all at once, and have never gone away.

If anyone else has had the myolitic/botox procedure done (or has even heard opinions about it!) I would love any thoughts!

seriously, scalene atrophy on a TOSer

I have had botox injections done in my scalene muscles guided under ultra sound and emg. This is a procedure I have never heard of ever before. Have you asked him how many times he has done this procedure, and what kind of success his patients have had? $2000. clams is alot to put out on a procedure that...may work. Good way to start doing research, but I would get a second opinion, before spending that kind of money. Just my 2cents. Wishing you releief whatever the outcome.
Cheers,
Jay

I just re-read the radiologists report, and the atrophy is only on one side, and it is mild.

I think I am going ahead with the first procedure tomorrow, since it did seem to help when I had it done (at the same place) 5 years ago. I did have a nice talk with the radiologist about his outcomes, and only one patient ever felt worse after the procedure, and most felt better.

I wish I had a crystal ball!

Yes but it is frustrating.

So how did this work?

KY

Emmie,

Did you ever have this done? What was the outcome? Has anyone else had this done?

I'd like to learn more about this. If I find out that my compression is not due to any bony abnormality, cervical rib, etc. and it's mainly due to scalene muscle hypertrophy as part of my training regiment, maybe it's possible to "shrink" the muscle in this way and remove the compression without going in and trimming it away.

KY

Hi! I am back but I was on this board for about 6 years. I had Dr. Miller but I don't know if he's still around Tustin or Santa Ana.

Any ways I have had botox injected into my neck, righ arm where it attaches to the elbow, and lots of back. I was not allergic to it, but would mention it with any dr. about to do it, as sometimes our allergic reactions.