Hello everyone!
Not sure where to start - my history is a long one and I am not diagnosed properly as yet but wondered if anyone could help me with some questions?

I've been having horrible neurological symptoms for about 4 years now but I guess my history goes back further to childhood migraines. I feel like I've always had a headache.

About 4 years ago the right side of my body went numb - an underactive thyroid was (finally) diagnosed but after much trial with medication and reaching my perfect levels the problem remained.

After all sorts of scans and tests nothing showed up - my right transverse sinus vein is partially collapsed while laying down but wasn't thought to be a problem.

In January I paid for a test for CCSVI, even though I don't have MS. I was shocked when it turned out to be positive.

The valves on my internal jugular veins appear to be malformed (but in a different way to what MS patients have) and about an inch above them my jugulars are very stenosed.

The clinic that diagnosed me decided not to operate on me as I don't have MS so I've been researching what to do.

I came across the idea of TOS/cervical rib while researching this and think it fits a lot of my symptoms - numbness of the arms, one sided headache/migraine, pain and numbness in facial nerves etc., carpal tunnel, very stiff, painful shoulders and neck.

I can't lay on my side or flat on my back or my symptoms flare - being upright is best but not always possible! I feel quite spaced out and weird all the time too (presumably from the stenosed jugulars which can't drain my brain blood efficiently).

I emailed my chiropractor this week and she's examined my x-rays but says she can't be sure of anything as it's unclear but there may be 'possible bilateral elongation of the transverse processes of C7'.

I'm trying to work out what to do next... but my silly question is... is it possible in anyway at all that if my problems turned out to be TOS that it could effect my right leg in anyway?? I have the same nerve pain there, on the outside too.

Thanks for reading - sorry it's so long!!
CindyCB. x