I have been struggling for a concrete diagnosis of having TOS or not. To date I have had primarily bilateral nerve symptoms including numbness and neuropathy. I don't have any loss of strength or pain of significance which seems to be a hallmark symptom common with the syndrome. Occasional burning in the forearms but that is very infrequent.

I have seen specialist after specialist with one or two suspecting TOS but others suggesting I don't have it. The diagnostic tests are usually negative and I can do the Roos test with no real symptoms of any kind. Adsons and other tests showed little change in pulse.

I have had a c-spine MRI which was normal and NCV and EMG which were relatively benign and revealed nothing. Lately my neuropathy is spreading where even small movements of my arm are causing electric sensations throughout - not overhead or outstretched. I am going to go back to a neurologist for more testing as this seems atypical.

Very scared and tearful, panicked beyond words.