Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-17-2011, 10:24 PM #1
Anne4tos Anne4tos is offline
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Default The TOS Smile

Whose smile is crooked? If you don't know, go look in a mirror and smile. Every TOSer I have met has a whacked smile, yet Doctors never discuss this symptom. Let's see if we can educate them!
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Old 10-18-2011, 04:39 PM #2
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Originally Posted by Anne4tos View Post
Whose smile is crooked? If you don't know, go look in a mirror and smile. Every TOSer I have met has a whacked smile, yet Doctors never discuss this symptom. Let's see if we can educate them!
I have a crooked bite and TMJ/TMD and definitely figure it's a piece of my TOS puzzle. So count me in.
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Old 10-18-2011, 04:42 PM #3
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tos and smile in the same sentence
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Old 10-18-2011, 05:58 PM #4
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Are your eyes, hips, shoulders, ears uneven too?

might be a misaligned c1/c2... upper cervical spine adjustments might be worth looking into.

www.upcspine.com
some of these really fit-
http://www.upcspine.com/respond.htm
http://www.upcspine.com/self.htm
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"Thanks for this!" says:
SD38 (10-19-2011)
Old 10-19-2011, 03:25 AM #5
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Originally Posted by Jo*mar View Post
Are your eyes, hips, shoulders, ears uneven too?

might be a misaligned c1/c2... upper cervical spine adjustments might be worth looking into.

www.upcspine.com
some of these really fit-
http://www.upcspine.com/respond.htm
http://www.upcspine.com/self.htm
Re: upcspine region issues.

I had a VERY strange experience 2 days ago!!!!!
I've been suffering ongoing Pulsatile tinnitus since my first rib excision op ( almost 8 weeks ago now). Recently my neck C0-C1 region???? has made some EXTREMELY loud cracks, on x5 occasions..... so loud that they have been heard by others some 20 feet away from me! Well anyway,this happened again to me the other day and for some reason the pulsing in my left ear seems to have stopped??????? My hearing is still slightly muffled and certain tones/sounds are uncomfortable BUT no constant pulse.
I now suspect that maybe I had a tight ligament/tendon crossed over that was pressing on my veins? My neck also feels SO much more free.
This region really does contribute to big probs..... why don't doctors see this??
Thanks Jo*mar for the links.
Interesting....... as I have a real issue also with my right gluteus medius muscle ( its out of wrack and looks swollen compared to the other side) and ongoing lower back pain!
SD38

Last edited by SD38; 10-19-2011 at 05:39 AM.
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Old 10-19-2011, 10:19 PM #6
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Interesting obervations Anne, I dont smile so cant tell, but I have noted this on many occasions with other tos people.
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Old 10-20-2011, 02:06 AM #7
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Re: upcspine region issues.

I had a VERY strange experience 2 days ago!!!!!
I've been suffering ongoing Pulsatile tinnitus since my first rib excision op ( almost 8 weeks ago now). Recently my neck C0-C1 region???? has made some EXTREMELY loud cracks, on x5 occasions..... so loud that they have been heard by others some 20 feet away from me! Well anyway,this happened again to me the other day and for some reason the pulsing in my left ear seems to have stopped??????? My hearing is still slightly muffled and certain tones/sounds are uncomfortable BUT no constant pulse.
I now suspect that maybe I had a tight ligament/tendon crossed over that was pressing on my veins? My neck also feels SO much more free.
This region really does contribute to big probs..... why don't doctors see this??
Thanks Jo*mar for the links.
Interesting....... as I have a real issue also with my right gluteus medius muscle ( its out of wrack and looks swollen compared to the other side) and ongoing lower back pain!
SD38
I knew I should have kept my mouth shut about the pulsatile tinnitus!!!!!!!!
It bloody returned last night about 3 hours after I sent the above post!
Anyway seeing the hospital registrars today for my post op follow up..... it seems like I have been waiting forever for this day to come.
I certainly have a LOT to discuss with them about ongoing symptoms and issues with my left side.
WATCH THIS SPACE.
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Old 10-21-2011, 06:12 PM #8
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Originally Posted by Jo*mar View Post
possibly a bruit?

I had it when my neck muscles were in spasms.
The muscles placed pressure on the arteries and made the whooshing sound in my head.

they have some sounds of bruit online - at the bottom of this linked page-
http://www.fistulafirst.org/Healthca...eConcept9.aspx
[Listen for the Bruit

From: Tushar Vachharajani, MD, FACP, FASN, Associate Professor Internal Medicine/Nephrology, Director, Dialysis Access Group of WFU, Wake Forest University School of Medicine, Winston-Salem, North Carolina, USA]
Hi Jo*mar
thanks for the link.
When I mentioned the Pulsing to my surgeon and asked if the surgery could have triggered it he said, its possible....... and that was it! AAAAAHHHHHHH
FRUSTRATION is a word that comes to mind.
I'm now thinking, lets just get this 2nd op out the way quick to see if it also helps with the pulsatile tinnitus. Damn, now I'm grabbing at straws to try and get some improvements.
Deep down I'm telling myself - Don't panic, you're just aware of the pulsing because of the change in blood flow due to the op on the other side BUT then another part of me thinks..... Is this something serious, why can I hear it this loud???? I used to like peace and quiet to relax with, now all I can hear is this constant pulsing hum. Quietness is NOT so peaceful!!!!!!
I've mentioned this prob with both the vascular surgeon and my GP and both are blaise about it.
I hope all is well, to me ( in my head) its sounds regular, no whistling just a constant low pulsing humming. Is this normal because of the new stronger bloodflow????? I guess I'll never know as my healthcare providers......I use that term loosely, are not bothering to consider it.
Hey, its just my sanity they are dealing with....right?
Anyway back to another session of self mental strengthening, as I think to myself that the sounds in my ears are just waves crashing against golden sands.
WHATEVER HELPS I GUESS.
Many thanks for your input as always Jo*mar, bless you
Best wishes to all
SD38
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