Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-30-2011, 05:03 PM #51
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Quote:
Originally Posted by kellysf View Post
I've gone out to dinner with friends, been able to drive a little, read without getting headaches. It might not sound like much but it's huge for me.
Are you able to legally drive while taking opioids??
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Old 10-30-2011, 05:36 PM #52
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wow i cant imagine hanging out with anyone for more than an hour straight, not sitting at least


that is huge

reading a book, no way
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Old 10-30-2011, 05:39 PM #53
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Are you able to legally drive while taking opioids??
It can be cured, not fully cured but you can improve to ther point where symtpoms arent as noticable.

But sorry to say a change of career is probably going to have to happen.

working at a computer most of the week causes all kinds of problems. it jsut isnt good

stopping work for about 3 months might have 2 happen to, otherwise it will jus be a case of oen step foward and 2 steps back.
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Old 10-30-2011, 05:40 PM #54
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:-( this is not quality of life. I feel like I am just slowly biding my time until I start the lifestyle of chronic pain and counting the days until I die. I see why people get desperate for a surgery they know has little chance of really working. There is no option left for them.
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Old 10-30-2011, 05:43 PM #55
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Tip : you need a life meaning compatible with the situation.
A life meaning were you have faith in it.

Personally i considere to try my own ideas for treating tos.
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Old 10-30-2011, 05:45 PM #56
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http://www.ncbi.nlm.nih.gov/m/pubmed...340101/related

Scary pub med report. Surgery for NTOS ended up so bad, one person committed suicide. I can understand the desperation and would probably do the same.


But they also had RSD/causalgia - which has been described as 24/7 pain.
Some have also acquired RSD before any TOS surgery.

[Brachial plexus injuries with causalgia resulting from transaxillary rib resection.
Authors
Horowitz SH.
Journal

Arch Surg. 1985 Oct;120(10):1189-91.]
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Old 10-30-2011, 05:48 PM #57
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It can be cured, not fully cured but you can improve to ther point where symtpoms arent as noticable.
If someone knows something I am not doing do tell. It's not for lack of trying. I don't know what else to do besides just stop working entirely. And I can't. :-(
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Old 10-30-2011, 05:56 PM #58
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Fair point, it's 20 years old. But "resulting from" means (to me) caused by the rib removal surgery. I guess it's pretty vague otherwise. But with even knowledge of that, who in their right mind would see surgery as a real possible fix for this. Just so deflating and hopeless. I wish the statistics were even just a little better.

I would speculate a "real" recovery statistic is more like 20% probability from nTOS decompression. That is just frustrating beyond all words that there can't be better odds. Sadly I'm at the place mentally where i'd even gamble with those odds. I'm that desperate.
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Old 10-30-2011, 06:02 PM #59
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how do u think i feel? im 25 years old, in my peak and along comes TOS. there has been times i have very strongly considered ending it all but then i jus woke up one day and thought there is alot worse then me out there.

Until you have tried everything , and it will take time ( give it 2 years or so) i woudlnt be gettting so down.

Like i said before there is a massage therapist i know that developed TOS and he took 9 months off work and is now back to work and feeling nearly pain free.

Its a process that alot of people and even Physio's dont understand or they jus dont botehr telling you. I have notcied with all the specialists u see none of them tell u wat they advise you shoudlnt do .

Me persoanlly im working hard now about (70hrs a week) and wen i have enough cash saved, im taking at least 3 months off work and dedicationg every single day to eating right , streching and strengthening and if after 3 - 6months im still not feeling good enough ill go back to surgeon and see wat he thinks.

If i have to ill get surgery because i understand long term compression to the arteries can cause serious damage after a while . and if after surgery im feeling worse then i was before.. ill go out with a bang somehow , but before that i will try everything possible.
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Old 10-30-2011, 06:43 PM #60
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Quote:
and if after surgery im feeling worse then i was before.. ill go out with a bang somehow , but before that i will try everything possible.
Totally agreed. I'm not giving up. But TOS is like a slow death sentence unless you're lucky enough to be one of the select few who get well. Living out the rest of my days like this? What's the point. Maybe I can win the lottery? Okay who am I kidding.

I'm only 33 too - so I'm not much older. I've already had to accept my career is ending because of it. My marriage is not far behind. I'm still in pain and fear it getting worse each week.

It's awful such small parts of the body can cause such debilitating discomfort.
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