Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-30-2011, 09:45 PM #1
cath1 cath1 is offline
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Join Date: Oct 2010
Location: Ontario, Canada
Posts: 213
10 yr Member
cath1 cath1 is offline
Member
 
Join Date: Oct 2010
Location: Ontario, Canada
Posts: 213
10 yr Member
Default Need help with Diagnosis

Hi everyone,

I am usually on the spinal forum, but I need help with a diagnosis of TOS.

A quick history on my situation:
I had an cervical fusion in March of this year (2011) C5, C6,C7 but even after almost 9 mths of recovery I am still suffering with nerve compression in my median nerve (wrist) & ulnar nerve (elbow), along with the very painful radiculapathy down my right hand, numbness/tingling in last 2 fingers, horrible pain in my scalene muscle, trap & shoulder, burning neck pain, clumsiness, hand weakness, no fine motor skills in my hand, etc...

I've been back to my neurosurgeon a couple times & mentioned TOS & it was dismissed, instead he said I have a double crush & offered to do an ulnar nerve transposition.

I see my neuro in 2 weeks for him to sign my functional abilities form to decide if I'm able to go back to work (I'm a graphic designer = lots of computer work). Currently I'm on worker's comp and they will want a diagnosis, not just "I'm still in horrible pain and can't do my job". So I really want help to make myself clear to my neuro.

Both my physiotherapist & massage therapist have told me I have TOS, and all my symptoms confirm that.

My questions: How should I approach this with my neurosurgeon to get him to give me a proper diagnosis of TOS when I see him next?
Is there a test I can ask for? What wording should I use?

He just keeps telling me my fusion looks good and the hardware is solid. He sent me for an EMG 2 months ago and it came back with mild compression of both ulnar & median nerve. What else is there for tests?

I really need a proper diagnosis to be able to ask my case manager at worker's comp for more time off or retraining in another area of work.

Help please!!
Thank you
Cathie
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