I've seen Dr. Mark Adelman at NYU and really like him. (Had previously been to Columbia/Presbyterian, Yale New Haven and Mass General.)

Was the first guy to take the time to really talk and explain and answer my questions to my satisfaction. And, even tho, as he said, he was a surgeon and that's how he makes his money, he did NOT recommend surgery, and advised against it for some very reasonable and legitimate and even scary reasons.

(Yale and Columbia were ready to cut in only 5-10 minutes of seeing me, because that's what you do for TOS..., Mass General wanted to run through his evidently standard routine of botox and such before deciding on surgery or not (several others here have seen him and been told exactly what he told me he wanted to do. Only with me, he mixed up my records with someone else's, and when I found out and told him of the mistake, he dumped me.))

Spent a year traveling this whole route before finding Adelman, am now trying his recommendations of what to do via physical therapy. But I am an unusual case, my vascular TOS is caused by keloid-type scar tissue around artery and vein, from broken clavicle that needed surgical repair, not from incorrect rib-clavicle spacing or muscle problems or any of the usual. But I was very impressed with Dr. Adelman and the staff there, as I has ultrasound testing (I also have subclavian steal syndrome and vertebro-basilar insufficiency going on from this) before seeing him.

I was just diagnosed with TOS and referred to a surgeon at MGH. I am curious to know who you saw. I am very leery of surgery, although I have some neurologic damage in my hand at this point.