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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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12-06-2011, 03:21 AM | #1 | ||
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I'm just curious to see if there are many, if any, people out there with bilateral V/A and some neurological TOS in the UK? If so how long have you had it, have you had an op, are you still suffering??????
I'm based in Greenwich- SE18, London. I'm female 38 and would like to know if there are any other fellow TOS ladies out there to chat to? winky: |
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12-14-2011, 01:09 PM | #2 | ||
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hi i live in Bristol, i dont have it bilaterally but i have just had surgery on my right side for n/a tos. i am 3 weeks down the line, its difficult to tell right now if things have improved as i have a fair bit of nerve damage from the surgery right now that needs to settle down. i start physio tomorrow to get the arm moving.. i am a bit impatient as i want to be able to get home to west wales for christmas.
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"Thanks for this!" says: | SD38 (12-22-2011) |
12-14-2011, 02:49 PM | #3 | ||
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I am from UK in a way. I used to live in Cardiff and in London, but I had to return back to my home country (in Scandinavia) because of TOS. I was also considering a surgery in UK since my home country does not have TOS specialists. I contacted e.g. John Thompson in Exeter Hospital based on his publication record on TOS.
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"Thanks for this!" says: | SD38 (12-22-2011) |
12-22-2011, 04:19 AM | #4 | ||
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How are things working out for you? |
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12-22-2011, 03:19 PM | #5 | ||
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"Thanks for this!" says: | SD38 (12-24-2011) |
12-24-2011, 03:21 AM | #6 | ||
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Personally I would only opt for the surgery if there was impingement/compression to the artery or vein, neurological symptoms can subside/improve if care and life style changes are made!!!!!! Recovery from first rib excision can be pretty tough going for some..... me especially I'm almost 4 months post op now and still having to take things easy! Keep in touch, it helps to chat Try to enjoy Christmas and enlist as many elves as possible to help with the Christmas prep and grub etc. NO LIFTING heavy shopping bags full of pressies. xx |
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12-22-2011, 04:17 AM | #7 | ||
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Hope you are well, its a long recovery road............... Did you get offered physio automatically or did you have to request it? I wasn't offered! I've ended up just trying to do my own. I know that sense of impatience to crack on BUT do take it easy..... 3 1/2 months down the line and I still suffer from over exertion. One day of cleaning and I can be suffering for the week..... take care of scar tissue! Best wishes Have a good Christmas. xx |
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