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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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#1 | ||
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I'm just curious to see if there are many, if any, people out there with bilateral V/A and some neurological TOS in the UK? If so how long have you had it, have you had an op, are you still suffering??????
I'm based in Greenwich- SE18, London. I'm female 38 and would like to know if there are any other fellow TOS ladies out there to chat to? winky: |
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#2 | ||
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hi i live in Bristol, i dont have it bilaterally but i have just had surgery on my right side for n/a tos. i am 3 weeks down the line, its difficult to tell right now if things have improved as i have a fair bit of nerve damage from the surgery right now that needs to settle down. i start physio tomorrow to get the arm moving.. i am a bit impatient as i want to be able to get home to west wales for christmas.
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"Thanks for this!" says: | SD38 (12-22-2011) |
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#3 | ||
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Junior Member
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I am from UK in a way. I used to live in Cardiff and in London, but I had to return back to my home country (in Scandinavia) because of TOS. I was also considering a surgery in UK since my home country does not have TOS specialists. I contacted e.g. John Thompson in Exeter Hospital based on his publication record on TOS.
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"Thanks for this!" says: | SD38 (12-22-2011) |
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#4 | ||
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Quote:
![]() How are things working out for you? |
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"Thanks for this!" says: | SD38 (12-24-2011) |
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#6 | ||
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Personally I would only opt for the surgery if there was impingement/compression to the artery or vein, neurological symptoms can subside/improve if care and life style changes are made!!!!!! Recovery from first rib excision can be pretty tough going for some..... me especially ![]() I'm almost 4 months post op now and still having to take things easy! Keep in touch, it helps to chat ![]() Try to enjoy Christmas and enlist as many elves as possible to help with the Christmas prep and grub etc. NO LIFTING heavy shopping bags full of pressies. xx |
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#7 | ||
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![]() Hope you are well, its a long recovery road............... Did you get offered physio automatically or did you have to request it? I wasn't offered! I've ended up just trying to do my own. ![]() I know that sense of impatience to crack on BUT do take it easy..... 3 1/2 months down the line and I still suffer from over exertion. One day of cleaning and I can be suffering for the week..... take care of scar tissue! Best wishes ![]() Have ![]() |
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