Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 01-15-2012, 11:49 PM #1
hollyjohnson71 hollyjohnson71 is offline
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hollyjohnson71 hollyjohnson71 is offline
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Default vasc surgeon

Quote:
Originally Posted by chroma View Post
I understand that. My question is where did pixified get the tests? I had an ultrasound too but neither the tech nor the doctor understood what was needed for TOS, even after I pointed it out.

@pixified, can you share where you got your ultrasound tests?

My TOS has improved considerably under conservative care, but my circulation still gets backed up in my neck and subclavian area. I would like some quantification of the compression I have.
My dopper ultrasounds were done at the vascular surgery center at Stanford University by the same doc that performed my rib resection.
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Old 01-14-2012, 10:51 PM #2
Mjg13 Mjg13 is offline
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Default Tough dx

It is tough to diagnose and everyone is different. My arm was purple and swollen with a deep itching in my chest, tingling pain in arm shoulder back neck, etc. all of my tests were normal. I was even given a diagnosis of mastitis, never mind the purple arm haha. I had MRI s, ultrasounds, horrible nerve tests, blood tests, etc. Neuro exam all NORMAL! the very last test, a venogram showed 75% mechanical occlusion of my subclavian vein. Find a doc that will stopatnothing to help you. Although rare, they are out there. Oh yeah make sure they do "dynamic"scans very important. Mine were always done with my arm down at my side, no good.
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Old 01-15-2012, 06:49 AM #3
hollyjohnson71 hollyjohnson71 is offline
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hollyjohnson71 hollyjohnson71 is offline
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Default temp relief as dx help

I was diagnosed based on symptoms and nerve conduction studies, but what really confirmed the thoracic outlet as the place of compression...for my peace of mind anyhow...was opening up that space briefly and experiencing heavenly moments of relief. Before my surgery I was asked to complete 2 months of the Edgelow Protocol - a specialized physical therapy just for TOS. The protocol never produced lasting relief, but there was one part of the therapy I could do that would give me profound relief for a few brief moments...maybe you could try this one technique and see if it works for you.
  • Lay on your back on carpeted floor with knees bent.
  • Take some nice deep breaths to relax.
  • Once you are a bit relaxed, begin arching your back as you breath in (visualize shortening your spine).
  • As you breath out, flatten your back and really "pull" your rib cage down. I would dig in my heels and use my legs to physically pull my pelvis down and really pull the ribs down. Visualize that top rib coming down and opening up that thoracic space.

For me, doing this would bring total relief to my arms. As soon as I would breath in again and my ribs went back up, the symptoms would return, but this really helped me know for certain that the thoracic space was the area of compression.

Hope this helps you...and perhaps others.
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