I am struggling with a very bad right-sided TOS flare. I have been diagnosed with ATOS and now seem to be getting the nerve pain along with the positional compression. I now continuously wake up at night with a heavy, numb, pinched feeling in my forearm and hand. It is a sickening feeling and it takes me a good 10-20 minutes to calm it once I get up. I am finding my hand (palm and back), fingers, forearm and a nerve right above the elbow in the back of my arm are just burning. It makes my lower arm and hand feel so heavy and I can't find a comfortable position.

I have tried sleeping with two shirts on so that I do not put my arm in the second shirt sleeve in order to keep it close to my body. That has not helped. I bought a wrist splint, thinking I might be curling my wrists too much in my sleep. No help. I also started wearing an ulnar nerve fitted arm guard the past few nights to see if that would relieve it - no help there either. So I am tired and anxious and fearful I will not get this situation calmed down.

Can anyone relate and if so, what do you do to sleep?

Thanks, Elyse