Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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View Poll Results: TOS sufferer, what best describes your current condition?
I am a female who has not had TOS surgery. 6 37.50%
I am a female who has not had TOS surgery.
6 37.50%
I am a female who is happy with the outcome of TOS surgery. 6 37.50%
I am a female who is happy with the outcome of TOS surgery.
6 37.50%
I am a female who is unhappy with the outcome of TOS surgery. 0 0%
I am a female who is unhappy with the outcome of TOS surgery.
0 0%
I am a female who has had surgery too recently to assess outcome. 1 6.25%
I am a female who has had surgery too recently to assess outcome.
1 6.25%
I am a male who has not had TOS surgery. 2 12.50%
I am a male who has not had TOS surgery.
2 12.50%
I am a male who is happy with the outcome of TOS surgery. 0 0%
I am a male who is happy with the outcome of TOS surgery.
0 0%
I am a male who is unhappy with the outcome of TOS surgery. 1 6.25%
I am a male who is unhappy with the outcome of TOS surgery.
1 6.25%
I am a male who has had surgery too recently to assess outcome. 0 0%
I am a male who has had surgery too recently to assess outcome.
0 0%
Voters: 16. You may not vote on this poll

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Old 04-04-2012, 01:59 PM #11
Limoges Limoges is offline
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Mspennyloafer, do you think your difficulty speaking to doctors has resulted in your not getting relief for your symptoms? Maybe you could find a friend or family member to act as an advocate when you go in for an appointment. I think even in circumstances where there's no issue speaking up that it can be difficult to remember to address all our questions. Any doctor that dismissed your inquiries shouldn't be treating you anyway! I'm sorry you had that experience.
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Old 04-04-2012, 04:21 PM #12
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Any doctor that dismissed your inquiries shouldn't be treating you anyway! I'm sorry you had that experience.
I second this. The notecard was the right approach. I write notes before (and during) Dr. visits otherwise I will inevitably forget something I had planned to cover.
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Old 04-04-2012, 07:26 PM #13
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Dr. Wladislaw Ellis M.D. has some good information on his website - http://www.doctorellis.com/index.html

What particularly caught my eye was this excerpt:



I've decided to ignore his statement of "a penchant for complaining" for the time being.

It seems the majority of forum posters are female I am curious as to what our numbers are here. If you wouldn't mind responding to the poll and add your opinions regarding TOS in women vs men.
I've read that it affects women more because of our clavicle and body structure. . I have the article somewhere. Mine is Repititve motion related.Alot of Weightlifters male and female also get it.
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Old 04-04-2012, 07:56 PM #14
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too bad we cant have a subset of surgery with c-rib or without c-rib
I think it would be great if we could post our own experiences or plans regarding c-rib, 1st-rib, or scalenectomy only.

I do not have cervical ribs. I am opting for rib-resection and have ruled out scalenectomy only.
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Old 04-04-2012, 09:45 PM #15
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I second this. The notecard was the right approach. I write notes before (and during) Dr. visits otherwise I will inevitably forget something I had planned to cover.
I agree with Marc. I use this approach and it works really well. If I don't, I will forget most of what is on the list. I have found that if I'm having a good day, I quickly forget about the bad days and the effects so the notes remind me and/or the doctor to explore further.
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Old 04-05-2012, 07:47 AM #16
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that doctor was a creep

he told me i was 'DOUBLE JOINTED' dumbing it down for me. if he had flatout told me hey you might have this awful genetic syndrome i mightve taken him more seriously and avoided lifting weights/injuries etc.

i just need to get over caring what doctors think of me being a hypochondriac etc. i mean, i am paying them after all.
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Old 04-05-2012, 07:52 AM #17
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Quote:
Originally Posted by Limoges View Post
Mspennyloafer, do you think your difficulty speaking to doctors has resulted in your not getting relief for your symptoms? Maybe you could find a friend or family member to act as an advocate when you go in for an appointment. I think even in circumstances where there's no issue speaking up that it can be difficult to remember to address all our questions. Any doctor that dismissed your inquiries shouldn't be treating you anyway! I'm sorry you had that experience.
my coworker kind of does this indirectly, she gives me pep talks and stuff
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Old 04-08-2012, 02:34 PM #18
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I've decided to ignore his statement of "a penchant for complaining" for the time being.
I didn't read it as his statement. He said "...which has been variously assumed to be due to..." as if he is reciting what he has read or heard various doctors say.
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Old 04-08-2012, 09:53 PM #19
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That's great to have someone who can do that for you, MsPennyloafer! (I keep wanting to capitalize the "L" in loafer!)
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Old 04-09-2012, 10:01 AM #20
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hahaha glad you like my pun
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