Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

 
 
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Old 06-05-2013, 09:36 PM #20
arlsandstrom arlsandstrom is offline
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Join Date: May 2012
Location: Australia
Posts: 55
10 yr Member
arlsandstrom arlsandstrom is offline
Junior Member
 
Join Date: May 2012
Location: Australia
Posts: 55
10 yr Member
Confused Sydney c7 extra rib fellow TOSer!

Hi Kira,
Sorry to hear you have extra ribs too. I have on both sides in the same position as you, but due to my singing I can't justify the surgery. I can't do operatic arias without thoracic rib age lift, and risk to the diaphragm is just too scary!

I only take mess about twice a week. The biggest problem seems to be for my husband tha I am always grumpy and not able to help with household stuff. But I can teach and sing, so am throwing lots of money at therapy, heat packs and dishwashers!

I am still struggling to find a doctor who will help. I have had amazing results with chiro and Alexander technique. I thoroughly recommend both to you. The chiro I have is light touch and no cracking. It is called network spinal analysis. Have a look at www.wellwellwell.com.au there is probably someone in Melbourne doing the same sort.

Penny loafer also posted something this morning about a clinic in Prarahn- doesn't help me, but see if you can find her post.

What I am struggling with is the constant decisions about what my body can handle and trying to explain to my husband that sometimes I just can't do any more. How are you coping with day to day?

Hope you find some relief.
Take care,
Ans



Quote:
Originally Posted by OzKira View Post
I thought I would pop in and let people know I am still on the merry go round. The Vascular has just discovered (12 months later after CT) I have C ribs and my Neuro said I have nerve issues on my left Brachial Plexus which is what vascular has been going by. Well now I read my last MRI and it's on my right side not left!!! And they wonder why I have more issues with my left. They weren't reading the scan reports but reading each others notes which were incorrect. As a result I have no faith in either Dr and are being referred to the hospital clinic by my GP. I am waiting to have an angiogram to prove I have compression issues with blood supply on both sides. He is disregarding previous dopplers.

Always a good thing not to trust your Dr and double check the reports from tests. Yes they do get things horribly wrong
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