Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 04-12-2007, 08:23 AM #11
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Dawn, sorry about the block response pointing toward the CRPS dx...I hope you can get the others done quickly and get it under control!
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Old 04-12-2007, 10:16 AM #12
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Hi johannakat, Dawn.. Hope your feeling better..

I do have a severe compression.. subclavian and I think that why he wants me to do it.. but I see a new Dr. closer to home on Monday...Thank you for the info.. I'm still learning about it !

Hugs,
Dolfinz
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Old 04-12-2007, 12:10 PM #13
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Default Hi Dawn,

I just wanted to say not to give up on those blocks. Some Anesteologist do a series of sometimes up to 15 or 20. They do work, I saw a difference after 3 of them.

Also that window of time thing is wrong and I say this every time. I have seen so many people around here that have had blocks after a long length of time. I believe that when Drs. say this that they are reading the old articles on this or for some reason they don't want to do any more if a few don't work.

I know one lady and I have told this story many times that had blocks after 30 years of RSD and she called me and said she had never felt better then since she had those blocks. I belonged to a group for awhile around here and I saw a lot of miracles with blocks. I also had a hair dresser that would make sure when I came in there she had an RSD patient in there at the same time. I met several through her and heard their stories. I talk to people a lot around here, even in grocery stores and when we compare notes on Fibro or RSD we learn from each other. I also had a hair dresser that did have RSD and she was working. I have a friend that is a nurse in the OR and she has RSD in her foot which we laughed about because she had TOS surgery and didn't get it there but ended up with it in her foot. When she sees it coming out she goes in for a block to calm it down. Which the last time she had to do that was about 3 years ago and she works 8 to 10 hours everyday.

I think you have to keep the attitude that you can get better with RSD even though I know it's hard. If it weren't for my PCP I would have gave up years ago but he kept me grounded and kept me from being put under the ground actually.

I hope things do start getting better for you and again don't give up on the blocks.

Ada
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Old 04-14-2007, 02:31 PM #14
Caladium Caladium is offline
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Default Thanks Johannakat!

Duoh!! Thanks for catching that! I meant stellate ganglion block. I guess reading Dolfinz post caused that to come to my head. Oh well, at least you caught it!!

And... I am still waiting on W.C.


Cala
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Old 04-14-2007, 02:39 PM #15
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Oh bugger, sorry caladium. needing a SG block is a big bummer. I wish it was a scalene block you were needing instead.

Johanna
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Old 04-14-2007, 04:09 PM #16
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Quote:
Originally Posted by Caladium View Post
Duoh!! Thanks for catching that! I meant stellate ganglion block. I guess reading Dolfinz post caused that to come to my head. Oh well, at least you caught it!!
And... I am still waiting on W.C.
Cala
Oh, Cala
I am so sorry to hear that you have to go thru with those Stellate ganglion blocks too... I hope the approvals come thru quickly for your blocks so you can get this under way ASAP...
Many Hugs and Best of Luck...
Dawn
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Old 04-16-2007, 12:02 PM #17
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Thanks Dawn, that's really nice of you ! Hopefuly it won't be much longer before I get the word.

I hope yours go well for you and resolve the RSD!

Take Care,

Cala
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