I'm new to the boards. Was diagnosed with bi-lateral TOS in March 2012. My story is not unique. Had pain in shoulders, neck, head, SCM, scalenes etc. for over 3 years. Was very physically fit and active, with no known injury to the area. Have been thru the TOS shuffle, many doctors, many misdiagnosis. I do have 2 extra ribs but chest xray shows they are tiny. I have been to a thoracic surgeon and second opinion with a peripheral nerve surgeon. One at Hopkins, the other at Georgetown University. My next step would be to try Botox and PT. I would like to avoid surgery if possible. I was hoping that I could find ppl who had tried the Botox and what their experience was like. For the people who have managed to avoid surgery - any great tips or advice? Hoping for some success stories