Hi Jo*mar

Curious to know if you recall any members on the forum that have experienced facial numbness on their operative side that starts acting up when laying down and as a result even when getting plenty of sleep creates aching type pain and when rising in the morning feeling just awful dizzy/lightheaded & nauseous and great fatigue throuhout the day. This is now occuring 20 months post op in addition to neck & chest tightness & BTW I can only sleep on my non-operative side only as when I sleep on my operative side I get almost a choking feeling which in turn brings on coughing and more pain.
I also have had shortness of breath quite a lot post surgery which has been very slow in improving....now mostly with exertion. I have been told that with phrenic nerve injuries it takes a long time even when it heals that the diaphragm takes time to get stronger to move as it should......also curious to know of others who have this problem.
Can this be scar tissue creating compression on nerves, etc.? and have others who also have experienced these symptoms found any answers?

chloecasey

chloecasey, Many have had TMJ sx w/TOS, I don't recall anyone mentioning facial numbness or symptoms like that.
You could try a forum wide search (link in my siggy) for posts about that, make sure the time frame goes back to 2006 the forum start up year.

Jo*mar

Thanks for responding....I don't have TMJ at all.
Forgot to mention that I had Horner's syndrome (operative side eye) that still is evident especially when fatigued.....another symptom of injury to the sympatheic nerve chain, as is the phrenic nerve.

chloecasey