[Bronwyn2]

Hello! I received a diagnosis of TOS today after having years of symptoms. I had a scalene block done on Friday and the relief was amazing. I'm not sure what type of TOS I have yet but I have been referred to Dr Kaj Johansen of the
Vascular Institute of the Northwest in Seattle and was wondering if anyone on here has been to see him.

[Sheri_TOS]

Hi! I saw him once about 3 to 4 years ago. For some reason, I didn't have to wait the 3+ months to see him. Hopefully, your wait isn't too long. He felt my vascular issues were secondary to another injury which has since been repaired. I was glad he didn't immediately suggest surgery. Since then, I have developed TOS on this side and I am currently being treated for TOS. I have had the other rib removed and so far (keeping fingers crossed), the operated side is doing good.

[Bronwyn2]

Thank you. I made my appointment today and will be going in to see him on Feb 7th. Do you mind if I ask who did your surgery?

[Sheri_TOS]

Wow! you only need to wait a few weeks. It definitely was a 3+ month wait for me had my situation not been considered urgent for vascular reasons. I'm not sure how my PCP was able to get me so quickly rather than wait 3 months. My surgeon for the right side was Dr. Ombrellaro. I see him in a few weeks regarding the left side.

[allyjade]

Originally Posted by Bronwyn2

Hello! I received a diagnosis of TOS today after having years of symptoms. I had a scalene block done on Friday and the relief was amazing. I'm not sure what type of TOS I have yet but I have been referred to Dr Kaj Johansen of the
Vascular Institute of the Northwest in Seattle and was wondering if anyone on here has been to see him.

Hi Bronwyn2,

I am very interested in knowing how your visit went and what your outcome was. Did you end up needing surgery?
I am currently in the same position you were. Going to see Dr Johansen to confirm TOS
diagnosis. But I can't get in until December.
I haven't had any type of block yet. But have had horrible pain and other symptoms for several years now.

Any info you can provide would be greatly appreciated. I just joined this forum so i'm not sure how and if I can contact you via email.

[Bronwyn2]

Originally Posted by allyjade

Hi Bronwyn2,

I am very interested in knowing how your visit went and what your outcome was. Did you end up needing surgery?
I am currently in the same position you were. Going to see Dr Johansen to confirm TOS
diagnosis. But I can't get in until December.
I haven't had any type of block yet. But have had horrible pain and other symptoms for several years now.

Any info you can provide would be greatly appreciated. I just joined this forum so i'm not sure how and if I can contact you via email.

My visit with him went very well. I REALLY liked him and his staff. I ended up having surgery and it went really well. I have a small amount of sporadic pain left but it is so much better that I don't really mind it much. It initially took me about that long to get into see him also, but I had my surgery 3 weeks later. Every doctor that I have seen for other things asks who did my surgery and they always tell me how fantastic Dr Johansen is. Best of luck! I will PM you my email address in case you have any other questions if you would like.

[jkl626]

Originally Posted by Bronwyn2

My visit with him went very well. I REALLY liked him and his staff. I ended up having surgery and it went really well. I have a small amount of sporadic pain left but it is so much better that I don't really mind it much. It initially took me about that long to get into see him also, but I had my surgery 3 weeks later. Every doctor that I have seen for other things asks who did my surgery and they always tell me how fantastic Dr Johansen is. Best of luck! I will PM you my email address in case you have any other questions if you would like.

What kind of surgery did you have? Doesnt Dr. Johanson just do scalenctomy only? And is that all you needed in your case?