[jennih]

Has anyone had surgery for TOS at the Cleveland Clinic in Fort Lauderdale FL (Weston)?

I've been diagnosed with PSS. A doctor friend recommended a surgeon in Gainesville, Fl, who has extensive experience with this operation. He could not remember the surgeon's name. Anyone know?

I've been diagnosed with PSS. Wondering is anyone else experiences these symptoms: a fullness/tiredness in the neck, shortness of breath, achy in the region. Happens when I use my arm, and when I talk a lot???

How much is too much? I have been told to rest and try to not move my arm until I meet with the surgeon. I am not sure what is too much.

Diagnosed with PSS, but no extra rib. Subclavian completely rerouted to jugular (with impaired function) when I raise my arm. Neck/head feel funny (full) when I look up or down for a while, when I talk too much (I'm a teacher), when I use that arm--from typing to dishes. Does anyone else experience this? How much should I cut back? Any suggestions/ideas?

[tsquaw]

HI. I'm new to this site and I am also checking into the Cleveland clinic or shands. I live in citrus county so the Cleveland clinic is quite a drive.

[Jomar]

Originally Posted by jennih

Has anyone had surgery for TOS at the Cleveland Clinic in Fort Lauderdale FL (Weston)?

I've been diagnosed with PSS. A doctor friend recommended a surgeon in Gainesville, Fl, who has extensive experience with this operation. He could not remember the surgeon's name. Anyone know?

I've been diagnosed with PSS. Wondering is anyone else experiences these symptoms: a fullness/tiredness in the neck, shortness of breath, achy in the region. Happens when I use my arm, and when I talk a lot???

How much is too much? I have been told to rest and try to not move my arm until I meet with the surgeon. I am not sure what is too much.

Diagnosed with PSS, but no extra rib. Subclavian completely rerouted to jugular (with impaired function) when I raise my arm. Neck/head feel funny (full) when I look up or down for a while, when I talk too much (I'm a teacher), when I use that arm--from typing to dishes. Does anyone else experience this? How much should I cut back? Any suggestions/ideas?

Hello jennih,
I merged your posts into a single thread so question & replies would be easier to follow.

[mom2nj]

I live in south florida also, did you find a specialist down here? I am seeing someone in miami but considering having the surgery up in boston. let me know. thanks!

[shengggmd]

Originally Posted by jennih

Has anyone had surgery for TOS at the Cleveland Clinic in Fort Lauderdale FL (Weston)?

I've been diagnosed with PSS. A doctor friend recommended a surgeon in Gainesville, Fl, who has extensive experience with this operation. He could not remember the surgeon's name. Anyone know?

I've been diagnosed with PSS. Wondering is anyone else experiences these symptoms: a fullness/tiredness in the neck, shortness of breath, achy in the region. Happens when I use my arm, and when I talk a lot???

How much is too much? I have been told to rest and try to not move my arm until I meet with the surgeon. I am not sure what is too much.

Diagnosed with PSS, but no extra rib. Subclavian completely rerouted to jugular (with impaired function) when I raise my arm. Neck/head feel funny (full) when I look up or down for a while, when I talk too much (I'm a teacher), when I use that arm--from typing to dishes. Does anyone else experience this? How much should I cut back? Any suggestions/ideas?

Pss or vtos or effort thrombosis is very difficult to treat. Especially when the vein has been chronically occluded. Has anyone tried to reopen the subclavian vein? The sequence of treatment usually is first trying to reopen the vein with lytic therapy . Followed few days or sooner by decompession of the thoracic outlet with venolysis. I am trying hard to get everyone educated on all forms of tos. I have seen too many patients missmanaged over the years , if I can get everyone to know what I know , I will have done my duty. If anyone has pss. The treatment is immediate lysis of the vein. Follow by decompression. They longer you wait to open the vein the worse the outcome is. So waiting to havevthis done electively is not a good idea.