i am a little overwhelmed by your list of sx!!!

yes, i am going out on a limb here but i would say you def have tos.

have you had any vascular tests done? are you on thyroid meds for low bbt?

scap winging is common with tos. and if one of your shoulders droops, there's actually a syndrome correlated with tos called "droopy shoulder syndrome". i went thru the same thing, i thought there was something majorly wrong with my arms and i would dump them and my hands in ice every night. by the time i figured it out all of this damage had been done and my neck became majorly involved

i am working now part time but i really shouldnt be. my hands are soooooooooooooooooooooooooooooooooooo tired

also weird to me that you tested positive for carpal tunnel then negative, makes me wanna get retested. my hands are numb but i was negative.

I tested postive for Carpal Tunnel in 2005, then had Carpal Tunnel surgery in 2006. Symptoms returned less than four months later. I assumed my CT surgery was "unsuccessful", but the more I've been reading about the "double crunch" the more I'm thinking I did have CT, I just had a much larger problem of TOS and they didn't catch it.

My EMG in 2009 and again in 2012 came up negative for CT, presumably because the surgery alleviated CT and now all of my issues are TOS related!

I'm a little overwhelmed by my list of sx, too. This past week was the first time I put EVERYTHING together. At the time, I didn't connect sinus problems or needing glasses overnight with my arm pain. I didn't think the ringing in my ears was related. As I really took the time last weekend to sit and write down everything that I think is "abnormal" about me, 90% of it could be tied back to TOS.

The only things I'm not sure on are my legs being cold, blueness in feet - same symptoms I have in my hands, but in my feet. My nose and ears are also easily "frozen" in cool temperatures. I get debilitating ear aches in 68* breezes that other people only get when it's -14*!

I know TOS doesn't really affect your lower appendages. This concerns me a little. There might be another issue going on or it might be possible that I have such a problem with the circulation that it's affecting more of my body overall. Time will tell!

I haven't had any vascular or thyroid testing/treatment done. I've only just gotten a chest X-ray and I'm waiting to go back to my neurologist on that. I am planning to have him refer me to a TOS specialist. It seems too complicated/serious to mess around with the small town local physicians where I live (boondocks Alabama).

My hands are numb. I can't feel my fingertips. The only real sensation in my fingertips I have is my pointer finger in both hands. The pinky and ring fingers do whatever they want, they stick out, lock up, shake, flip open etc.. at a whim. My middle finger seems to do what I want it to, but I have to assume sometimes since I can't feel with it..

Sometimes when I'm washing my hair, I can only feel my scalp with my pointer fingers and I have to use my scalp's sensation to know if all my fingers are touching my head or not.. usually they aren't! LOL!

you might google raynauds phenomenon

it actually isnt that serious but it will make your hands and feet change colors

I was diagnosed with Raynauds in 2006! It is just a subsidary of the TOS, though, as I'm going paralyzed in my hands and Raynauds doesn't do that.

I may have missed it, Have you had any kinds of therapy? like postural, trigger point, manual massage,body work, anything?
Any expert chiropractic?

Previous whiplash or accidents that could have caused misalignment's?

Some of your sx do sound like they could be trigger point related.
http://neurotalk.psychcentral.com/thread125577.html

And some might be RSD & TOS? or some combination of another condition.

What conditions/disabilities do your parents have- anything similar?

TOS can have something called double & triple crush - makes for sx at carpal or ulnar but the true cause is up the chain in the BP/neck areas.
sorry the carpal surgeries were not helpful...but that shows cause is up higher..

Jo*mar,

I have not had any therapy/treatments yet. I am only six months into seriously looking at my medical condition and only a couple of weeks into serious diagnosis/possibly figuring things out.

I don't have a history of accidents or whiplash - actually, I'm pretty healthy in terms of my medical history outside of the above mentioned symptoms - never broken a bone or been in an accident, etc.

My parents have no similiar conditions, but their own problems. My mother has back issues with herniated / bulging discs and my father has a history of knee issues and now some shoulder problems with a torn rotary cuff. They both were exceptionally healthy until they each reached a certain age/point in their lives and now my father is disabled and my mother would be if she admitted it..lol.

The cause is definitely higher up! Somewhere in my shoulder area. If it's not TOS, it is something else in that area involving the nerves. It may not be a cervical rib or scalene muscles at the Thoracic Inlet, but it could be in similiar areas... at the moment, though, I'm strongly believing it's TOS. I get my X-Ray back on wednesday to see if it's a cervical rib and will go from there.

youre right about that!!

id get like a GOOD pt who does manual therapy to give you a going over, and pay attn to EVERYTHING they say. then you can take this knowledge and use it every day. if they say your shoulders are downwardly rotated that is a huge deal and will give you tos. the shoulder girdle is very important.

like i know from research online where my pec minor is and it is freakin grid locked. i am working on it every day and i do feel better. pec minor stretches dont really help, i have to get my hands in tehre and work on it constantly. i can tell when my ribs elevate and my pt pretty much confirms it.

if your hands and feet are acting up, then it could be system like thyroid or magnesium deficiency, diabetes, etc.

i think my tmj (and pec minor) are giving me tos more than the other way around, which is a bit odd but my tmj is awful awful