Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 04-26-2007, 06:51 PM #1
momzpeachy momzpeachy is offline
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Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
momzpeachy momzpeachy is offline
Member
 
Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
Confused HELP - Total frustration!

Hi everyone

I haven't been on in a while and I miss talking with everyone and reading all the posts. I have been so busy lately with my daughter and her medical conditions and then also dealing with mine. I'm totally losing my mind!!!!! I'm at a breaking point! Ok, think I've been there for a while now...now I'm hanging on by my fingernails.

I am in SO MUCH PAIN! I am so ****** off! My neurologist dumped me off on another Doctor at a pain management center. He said the trigger point injections weren't working..well no duh..I told him that after the 3rd one but he insisted on going to 6x and still nothing. So then he wanted this other Doctor to try facet joint injections. Well, I went for a test block on Monday. It didn't do anything. I didn't get the results they were looking for so that's not it. I was good and numb for 2 whole hours and then mypain level was up to a 15 (on a scale of 1-10) and this was by 6:00 p.m. and the injection was at 11. So then the office told me they would call me the next day to see what the Doctor "wants to try next"

I get the call the next day and now he wants to try it again and go on the left side now too just to see how that work. SAY WHAT! Now both sides - more needles in my neck! I don't think so!

Since Monday...my pain has been 10x worse and nothing relieves the pain. No heat, no medication, no nothing. I also have a numb hand all the time. I don't feel things when I pick them up. Then I get a fire feeling shooting down my arm then my hand gets warm almost hot. I can't move my neck hardly at all. I can't look down. When I do OH MY GOSH IT HURTS. The back of my neck hurts and burns so bad. I get dizzy and feel like passing out. I can't use my right arm at all. I can't even move my clothing in the closet with my right arm! THIS IS REDICULOUS! Now here's more...

I now have back pain...of course on the right side. It hurts to cough. It hurts to bend. It hurts to sit. It hurts to lay down. Now the pain is in my legs. I can't get up the steps without tears. I then get burning in my knees. Ok, now what..I'm getting worse and no treatment! Nobodyknows what to do.

So I started reviewing my records and makingsome phone calls. I had a C Spine MRI in Feb and on the report it shows some things. At C4-5 disc osteophyte complex with a small central protrusion. Minimal canal narrowing. At C5-6 there is a small central disc protrusion with mild central canal narrowing.

Impression: Mild spondylosis as described

Now why has nobody looked at that and mentioned it! I also told the neurologist that rheumatoid arthritis runs on both side of my family and also osteo arthritis and osteoporosis and generative disc disease. My grandmother, my mother, and my aunt all had neck surgery in the same area and all had the same pain and same problems.

I WANT TO SCREAM! What if this is not TOS and not work related. What if it is a spinal problem. I also had a hysterectomy 3 years ago which can start these kind of problems. When I originally told my neurologist all this stuff...he told me "I was too young to worry about those kind of problems"

Ok, help me here...where do I go from here?

I have na appt with a neurosurgeon tomorrow. I don't know this Dr or anything about him but I need help! HELP HELP HELP!

ok..I gotta go...hope all of you are well...

Now I have been diagnosed with carpal tunnel, TOS, myofascial pain syndrome, and possible RSD...but what if it's none of those!
__________________
momz of NE PA:
Right side TOS (Scalenectomy 1-14-08). Spinal problems. Thoracic Spine hernaited discs pressing on spinal cord and small tumor - still being investigated. A very tired mom who feels like giving up!

Wishing I could think more positive and be well again!
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