Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Old 08-24-2007, 06:08 PM #1
Mimi4 Mimi4 is offline
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Join Date: Aug 2007
Posts: 8
15 yr Member
Mimi4 Mimi4 is offline
Junior Member
 
Join Date: Aug 2007
Posts: 8
15 yr Member
Confused TOS/WC combo mess

Hi All~ I am guessing this is how I enter into the TOS forum?? I have been in pain since 9/2005 and continued working until 5/2006 not knowing what was wrong. 5/2006 went on med LOA and continued seeing docs at Kaiser for headaches, pain in shoulders, arms, elbows, wrist and hands, my ears started ringing and I have had a hearing loss (now 3), I have fullness in my head when I get up from a sitting position and sometimes from just turning my head. Kaiser did MRI's and found I have a bulging disc in C 5-6 some in 3-4, so they concentrated only on my neck gave me a few steroid blocks but ultimately couldn't find anything wrong with me for the symptoms I was posing to them. They all but thought I was nuts and offered all kinds of meds which didn't help. We dumped Kaiser in 12/06 and Jan. 07 went for my first visit to Kerlan-Jobe in L.A after 2 visits it was determined that my neck wasn't the issue and TOS was suspected. I had a Brachial Plex. MRI which confirmed the TOS. PT is too painful for me so I have stopped it. The docs won't give me meds, only sleeping pills as lying down on my sides is painful and both arms go numb and fuzzy... I most recently was referred to Dr. Ahn in L.A, he wants to do the rib resection surgery, I opted for bilateral scalene Botox injections (if I can get some info on them). I am presently getting acupunture and looking for someone that does medical massage. WC is a whole different issue, it was brought to my attention in Jan. of 07 that I should have been on WC since I went on LOA in 5/06, so I filled and boy did that open a can of worms! Of course I was denied and had to hire an attny. I am anticipating a QME in the near future, all the docs picked were orthopedics???? Shouldn't I be going to a Thoracic Specialist? Can I fight the attny on this?
I don't know what to expect anymore, my body is tired and in pain 24/7, I have no meds, not enough info to make a decision, and frustrated with the docs, WC and the attny!!! I can see why people throw in the towel.
On a brighter note I love this site and have aquired some great info and only wish I had found it sooner.
Any advise or info is greatly appreciated. Sorry I rambled on but nobody gets it except you guys. Thanks! Mimi
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