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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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#1 | ||
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In Remembrance
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Hi guys, it's me TamaraShadow!!! Somehow I couldn't get my old name back...
Right now my issues are: post surgery pain to right side, TOS; considering whether to proceed to surgery on the left before symptoms become very bad as they did on the right; or wait and see; lung problem (adelectosis) being diagnosed and treated - have to go through private insurance as work comp is ignoring it; just got 10 or 12 visits of psych counseling - YAY! I need it. Severe fibromyalgia in whole body. RSD has retreated a lot, just a little on arms and back of calves occasionally. Missed you all SOOOOOO much. Still sleeping two or three hours here and there, which really messes up the day time. (I am doing this at 4 AM and need to take my pills for pain as it's sky high.) So bye, bye! PS Laura, saw you called today, I was sleeping most of afternoon / PM time. Will try to call back soon. |
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"Thanks for this!" says: | (Broken Wings) (03-02-2009), wishuloveb (07-21-2013) |
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#2 | |||
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Senior Member
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Hi everyone
![]() Since we are doing introductions.... I'm Liz, with no official TOS diagnosis but a doctor who said "probable Left sided TOS". I never went to a specialist to get 'officially' diagnosed because it doesn't really matter anyway (since I could never and would never have surgery anyway). Based on symptoms, the doc who said 'probable TOS' says it is neurogenic TOS. So I'm just gentle with my arm to try not to make it any worse. I have Fibro, and connective tissue disease, and "possible MS" and a variety of other stuff for which I take a variety of meds. Nice to be able to see everyone again and reconnect ![]() ~Liz PS to Tamara --- the reason that you couldn't sign-in as TamaraShadow is because these are completely different forums with no affiliation to braintalk or John Lester, so there is no database that remembers anyones usernames from the original BrainTalk. This forum was set up by a man named DocJohn who runs the website and forums at PsychCentral and he set them up because he was concerned with BT being offline for so long with no updates, so he set up this BT2 for the BT members to be able to get back in touch while the original BT is offline/broken/gone. He named it BrainTalk2 so that people could easily find it. Some people want him to keep this place open even after the original BT is fixed (there is a poll about that in Forum Feedback along with lots of posts as to peoples reasons for wanting this place to remain open) and if it does remain open after BT is back online, DocJohn said he would then change the name to something different. You could use the name TamareShadow here, you just have to newly register it the same way you newly registered tshadow. |
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"Thanks for this!" says: | (Broken Wings) (04-13-2009), wishuloveb (07-21-2013) |
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#3 | ||
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In Remembrance
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Actually I did try to register Tamarashadow, but it said someone else already took it, and that it didn't register my email...so I had to choose another one. I kind of like my new one, though!
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"Thanks for this!" says: |
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#4 | |||
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Member
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Injury 6/2000, continued to work with minimal restrictions.
Dx'd 5/2002 8/2002 Bilateral BP & R Ulnar Nerve Depression 9/2002 Symptoms returned 1/2003 RCTR 8/2003 W/C denies ALL PT, recommended tests, pain management & vascular surgeon consult 8/2005 dx'd with Ovarian CA W/C continues to deny all ... But hey, I'm alive and fighting everyday even though it gets old, old, old. |
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"Thanks for this!" says: |
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#5 | |||
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Junior Member
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That's Right....work Comp Is Bs!!! Now Denying My Meds As My Adjsuter Indicated That My Pain Meds Would Not Be Denied...she's A Lying *****
__________________
TO LOVE AND BE LOVED IS THE ONLY LIFE I WANT TO LEAD.....(MYSELF) . |
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"Thanks for this!" says: | (Broken Wings) (04-13-2009), tiredofwaiting (01-13-2012), tshadow (11-11-2011), wishuloveb (07-21-2013) |
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#6 | |||
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Co-Administrator
Community Support Team
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1999 - Bilateral repetitive strain = fingers, hands, forearms
2001 - R- neck/shoulder strain - due to work 2002/2003 - another neck/shoulder strain R- {slight tear??} - due to work Barely recovered from that and {MCO} Dr. returned me to full work {again??} 2003 - all of the above returned and increased in symptoms over time Eventually spred to include some short term ulnar nerve pain and L shoulder pain, with some hypersensitivity remaining in elbows and forearms for over a year. 03/04 started seeing links and info about TOS and then found BT1. Most of my symptoms are mild now, as long as I pay attention to overuse and posture issues. I think I do have a chronic C/T spine strain along with TOS & RSI If I lift or carry something heavy with arms out I get a very weird pulling pain right in the T spine/C spine junction. Even reaching out over the couch to slide the window shut is a pain. Last edited by Jomar; 10-06-2006 at 05:49 PM. Reason: added and clarified |
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"Thanks for this!" says: | (Broken Wings) (04-13-2009), NerPain4 (11-17-2012), SkimbleShanks (03-05-2015), tshadow (11-11-2011) |
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#7 | ||
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Member
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1991-rear ended minor whiplash
1993-rear ended minor whiplash 1994-I rearended someone minor whiplash 2005-rear ended march 2006 diagnosed with bi-lateral TOS June 2006 put on surgery wait list I did 6 months of physio and and continue to do chiro1 or 2x per week. I am remodeling my basement and deck, and I run a daycare from my home. My pain levels are growing week by week. My lawyer is on leave for cancer treatment, and my husband works 50 hours per week. With any luck at all, the surgery will come soon, and hopefuly I will get better, get retraining and be able to go back to work. |
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#8 | |||
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Member
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Hi
1990 Bi lateral c7 ribs excised with stellate ganglion sympathectomies 6mnth recovery but car crash - rear impact left with bad whiplash --injections in neck for headaches etc and neck pianfor several years. Viral illness left with neuropathy to lower limb R SIJ problems - pain +++ All seemed ok til 04 - L wrist pain....within 10 days raging bilat arm pain..only relieved by being flat hence my sign on name Horizontal. Then that did not help. Lots investigations.....CXR, MRI, EMG ruled out hind brain herniation but do have narrowing/disc degen down c spine. 05 - had exploratory surgery L brachial plexus ----adhesions, rib end excised, muscle cleaned up, nerve fibres pinned down, released...recon work to sub clavian art... Have colour change, cold hands, grip probs, sensation issues Very tight thoracic outlet space......lots nerve damage. Post op......still pain probs persist....lots of drugs inc Ketamine Breathing problems - have L. hemidiaphragm paralysis and partial paralysis to R. on oxygen and SOB minimal exertion. Review with surgeon very soon...also under pain doc. - both great docs. Getting lower limb problems - both knees jointly (no pun intended) giving me pain...despite the pain meds I am on...so this is giving me trouble getting up and moving about. Had to retire from work.....fed up but maintaining ability to laugh as if get depressed wont be able to drag self out of hole with useless arms. That's me....like you found myself here and made some great friends...great help and useful advice. Last edited by Horizontal One; 09-07-2006 at 07:10 AM. Reason: Brain like sieve!!! |
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#9 | |||
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Junior Member
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![]() its Kimmie here don't know if you rember me I don't post alott mostly just watch. any ways Hi Tammera Hope you are feeling well. I was ina head on closion car accident. (L) Carpultunnel surgerys x 2 (R) Carpultunnel surgery x3 I have had 2 surgerys on the (R) side scalemenectomy, 1st rib resection "98" I have had 3 surgerys in my (L) side 1st rib resection, scalenectomy, 1st rib resection Jan. "99" 7 months later. removel of Bone spure, redue sympathectomy witch was very very painfull I don't recomend it., "2003" BAck fusion surgery ALIF "2004" digenitive disc. L45-S1 I also had to have a Pota-Cath placed because when they go to draw blood they don't get any. Do's any one else have the same thing.??? Kimmie ![]() |
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#10 | ||
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Junior Member
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Hi, Im new at this. my name is pete. I had rib ressection on right side two weeks ago. Phrenic nerve was [damaged] now i have paralyzed elevated diaphram on right side. Anyone else have similar[complications]?
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