[chroma]

Originally Posted by Titus

How did you know that you had pec minor issues? is there a test?

My TOS was diagnosed independently by first a chiro and then later a vascular MD. My pec minor syndrome is self diagnosed based on three things:

1) The paragraph "In 2005 we became aware of a large number of patients who, in addition to these symptoms, also had pain in the anterior chest wall, just below the collar bone along with pain over the shoulder blade and in the arm pit. Until recently it was thought that these symptoms were due to TOS, but now it has been learned that they are due to a condition frequently accompanying TOS, namely pectoralis minor syndrome." at http://www.ecentral.com/members/rsanders/ matches my symptoms

2) My PT has found my pec minor on the symptomatic side is tight. (She also agreed with pec minor syndrome when I showed her the above paragraph.)

3) When I do pec minor stretches, I can feel the one on the symptomatic side is abnormally tight. Almost like it "catches".

[Jomar]

I had time to place copies of the newest members posts here on the main TOS forum thread list.


It works best to carry on the conversations on those threads.

here is the main TOS thread list- you can find your threads there in the list
http://neurotalk.psychcentral.com/forum24.html


New members can make a new thread here-
http://neurotalk.psychcentral.com/ne...newthread&f=24

[loranne]

Hi

My symptoms are very hard to live with. Dr diagnosed TOS but I don't have any venous impingement.

I have svere muscles spasms in neck such that if I recline my head back a little or try to lie back it feels like I am being strangled. My nights are spent sitting up in recliner with very little sleep.

They trigger off daily migraines as well. I also have have been mostly bed or housebound for 30 years with ME/CFS and I think my bad posture from this has caused the TOS.

I do wonder if I have TOS or just muscle spasms.

I have been having physiotherapy, massage, chiropractic and will try acupuncture next. The scalene stretches make it worse.

Feeling desperate as I can't tolerate many medications which may help. Its been interesting to read of everyones experiences.

Loranne

[Limoges]

Hello! I've been reading this forum for weeks now. I've had TOS for over 30 years. I've been to every possible type of doctor who could find no reason for the pain I had. Over the holidays I was having arm spasms, so I did some surfing and came up with a chart that showed exactly where I'd been hurting all these years. I looked into TOS, gave Dr. Dean Donohue a call on the off chance that this is what I had, and went in for a visit. After going to physical therapy almost every other year of my life and feeling like a complete crazy person, he found that my first ribs have congenital abnormalities that are likely the cause of my pain.

I'm nervous about pursuing surgery, especially with two kids and a husband who isn't a great caregiver. Being home bound and unable to drive also seems pretty tough. But, the pain is dreadful and has affected my quality of life.

I swim almost daily and do pilates (not well at all, but I enjoy it). I worry that lying around for a few months will result in depression, which I'd like to avoid.

Anyway, that's all I've got! Thanks for listening and thanks for sharing your stories which have helped.

[Jomar]

Hello & welcome,

Please copy/paste your post from here, or make a new thread on the main TOS section.
Sometimes we don't notice new members that only post in this thread.

And it works best to carry on conversations on the main TOS forum section.

here is the main TOS section -
http://neurotalk.psychcentral.com/forum24.html


New members can make a new threadfor themselves here-
http://neurotalk.psychcentral.com/ne...newthread&f=24

[Blurto]

Hello everybody,

I am a 52 yo male and i am pleased to have found this wonderful forum that I wish I had found some time ago. I live in Australia and we have the same issues with access to medical treatments as other countries, so you find good professionals, you want to hang on to them!

My TOS was diagnosed late 2010 after i noticed periodic slashing pain in the lower thoracic spine. I was ultimately diagnosed with a very large tumour in my neck (RHS) that had grown amongst the nerves, muscles, tendons and had compressed all the tissue in the right thoracic outlet area.

This resulted in the tingling in the fingers, cold and painful arm, collapsed shoulder and it was twisting my spine. Needles to say, I became quite precious at work, and everywhere else.

Surgery was successful but five months later scar tissue has grown and created much the same symptoms as before, and now my surgeon says a 1st rib resection is his next step, along with clearing the scar tissue as best he can.

I have been resisting this step until now, and after finding this forum, I now have the confidence to go ahead with it, as I do not feel so alone anymore.

I look forward to following all the posts of the most recent surgeries and happy to post my own experiences if anyone would like to follow.

[nospam]

Blurto, welcome

Very unique case. Is your TOS is just on one side? I'm looking forward to following your progress.

[Jomar]

Originally Posted by Jo*mar

Hello & welcome,

Please copy/paste your post from here, or make a new thread on the main TOS section.
Sometimes we don't notice new members that only post in this thread.

And it works best to carry on conversations on the main TOS forum section.

here is the main TOS section -
http://neurotalk.psychcentral.com/forum24.html


New members can make a new threadfor themselves here-
http://neurotalk.psychcentral.com/ne...newthread&f=24

Bump up for new members