Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 04-16-2013, 10:32 PM #1
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Originally Posted by nospam View Post
Great news. I hope they have internet access, the food is good and the nurses pleasant so you don't get cabin fever.

2-3 weeks to return to work if optimistic IMO, 5-6 realistic...if all goes well.

Good luck to you!!!


HAHA! I can tell you now... there is no internet access (unless you want to pay a $15 fee per hour or something stupid like that ) but THANK GOD! for smartphones! (can't live without mine)

I'll try and post some pictures of Toronto hospital food, I will tell you now, it will NOT be eaten (you might end up seeing "ensure/boost, Starbucks, or our famous Tim Hortons! in the pictures).

Thanks again for the heads up on the 5-6 realistic time period. It makes a hell of alot more sense.
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Old 04-17-2013, 12:37 AM #2
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Oh man, hospital food! My one single complaint about my experience at MGH. The lady who serves meals in the thoracic surgery recovery area is the nicest and most helpful woman alive. But that food is terrrrible. I'm not Canadian, but I sincerely wish there was a Timmy's in the MGH area. I cant afford to lose any more weight.
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Old 04-17-2013, 01:34 AM #3
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DO NOT FORGET YOUR PHONE CHARGER!!
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Old 05-17-2013, 02:58 PM #4
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Default How are you doing?

I'm 18 days post-op first rib resection and doing pretty well. Curious about others' recovery. Started PT yesterday and am definitely sore, but not horrible pain or anything.
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Old 05-25-2013, 11:09 PM #5
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Thank you everyone for the suggestions!!

I saw my thoracic surgeon this morning, for the pre-surgical consult. Turns out they are doing 2 surgeries at once.

Thankfully, I will be admitted for a minimum of 5 days, due to my medical history (allergies to: NSAID, Fentanyl (most common pain med given in surgery). and the fact i'm immune to most pain meds other than hydromorphone (and that barely works).

When I asked about length of time off work. He said 2-3 weeks I should be good enough to return to work (hmmmm I wonder if that is accurate).

I am DEFINITELY taking 'kellysf' & 'BDBomg' advice on using a sling!! today alone i got bumped into 4 times!! (hurt like a *****, had a few tears drop - blamed it on the rain haha).

nowwww it's the waiting game.... for the date of surgery....


Thank you again!!! if anyone has any other info/suggestions re: TOS surgery please let me know!!!

I believe from your post that you live in Canada and I am unaware of their policies for help. I told my Dr. that I will have NO help which concerned me to no end. I called my insurance company (Medicare and AARP supplement) and asked what the circumstance would be for me to either go to a re-had after the hospital or have someone from the VNA (Visiting Nurses). The told me that you must be in the hospital 4 days, not come out on the 4th day, be in the hospital a full 4 days in order to qualify for the re-hab and your doctor must request it in writing. I will be in 2 days. The qualifications for the VNA are the the doctor request it. When I told the doctor I would have no help he said, don't worry at all about it. When you are in the hospital the VNA will come to you and make the arrangements. My insurance co said you are allowed to have the VNA 1-8 hrs a day depending upon need. I surely hope this can help you because I know the fear and insecurity of feeling alone without help. Let me know what you find out about getting help because now I'm worried about you. Maybe you were unaware there may be help. Don't be afraid to ASK for HELP, please.

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Old 05-26-2013, 10:35 AM #6
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Originally Posted by irisheyesmilin View Post
I believe from your post that you live in Canada and I am unaware of their policies for help. I told my Dr. that I will have NO help which concerned me to no end. I called my insurance company (Medicare and AARP supplement) and asked what the circumstance would be for me to either go to a re-had after the hospital or have someone from the VNA (Visiting Nurses). The told me that you must be in the hospital 4 days, not come out on the 4th day, be in the hospital a full 4 days in order to qualify for the re-hab and your doctor must request it in writing. I will be in 2 days. The qualifications for the VNA are the the doctor request it. When I told the doctor I would have no help he said, don't worry at all about it. When you are in the hospital the VNA will come to you and make the arrangements. My insurance co said you are allowed to have the VNA 1-8 hrs a day depending upon need. I surely hope this can help you because I know the fear and insecurity of feeling alone without help. Let me know what you find out about getting help because now I'm worried about you. Maybe you were unaware there may be help. Don't be afraid to ASK for HELP, please.

Irisheyesmilin
Unfortunately here in Canada is sort of the same. I have "sunlife" (private insurance) and I am only able to use $400.00 worth of physiotherapy/homecare nurses a year (Plus I need a request from my dr). which is like 5 physio treatments, and the closest one to me is a 30min walk. I was given a booklet of physio exercises I'm to do, my biggest issue is the nerves that are healing still (keep dropping things) - embarrassed to say yesterday alone i broke a pint glass, coffee mug, small plate, and a magic bullet cup with banana smoothie all over my floor. So far this morning it's been good nothing broken.

I see my surgeon on tuesday, i'll talk to him about physio (or if it is just the healing process thats taken it's toll on me) and not realizing my limitations due to surgery.

thank you for your suggestions

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Old 04-18-2013, 11:33 PM #7
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sooo... I have my surgery booked. May 9th it is. I was NOT expecting it to be so soon. Here it's more like 2-3 MONTH wait for surgeries (unless it's very urgent). especially the hospital mine is being performed at.

now.. i'm just freaking out about the fact if there are no private rooms available the day of admission. If I get a semi-private and have to share. OMG! i'm sort of a clean freak, and the fact I will not be the most pleasant person to deal with after surgery, if anyone gets on my nerves (I am NOT nice).

what is going through my head is "how clean is the bed", "how clean is the washroom", "seriously I have to share a room"?, "NOONE better use the freaking patient washroom other than PATIENTS!", "There better not be many visitors if there is another person", and "they better NOT be screaming when the so call talk", "no one better bring in food that are strong" OR PREPARE IT (yes a friend of mine, she had just given birth, and her room-mate's husband brought in a portable cooker, and was cooking some sort of Chinese/Korean food).

I swear I am brining Lysol cleansing wipes with me (no joke).

and being aware than I won't be able to/ or can't clean is getting me anxious (even though I know i'll be cleaning the crap out of my place before hand).

Sorry for the rant. just a lot going through my head right now.... AHHH!.
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Old 04-19-2013, 12:16 AM #8
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You might share some of those concerns with your surgeon, maybe they can do something to help alleviate some of the stress about it.
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Old 04-30-2013, 05:54 PM #9
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I am 3 weeks post-op from a first rib resection and now doing pretty well, but still on oxycodone, although significantly lower dosages then the first couple weeks. The first 2 weeks were a bit tough for me in terms of post-operative pain and to be honest with you I had to be re-admitted once for another few days for IV pain control. I am a registered nurse in a busy Boston ER so I probably will not be able to go back to work for another month or so, which is right on target per my surgeon. If I had a less physical job, I could foresee going back sooner.

Best, Lisa


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Originally Posted by Toronto,Canada View Post
Hi Everyone,

I'm going to be booked in for a 1st rib resection for "TOS, Vein compression" due to a car accident May 2012. the JUST found out 2 weeks ago, scar tissue is severely compressing the nerves, and subclavian vein.

I haven't been able to find any information regarding returning to work post-op???? being a work-a-holic i'm just curious on people's recovery period and being able to return to work. I do a desk job, Stats Analyst.

Aswell I have concerns hearing AVOID public transportation, and needing help post-op. i'm just worried, because I live in Toronto, and that's my only mode of transportation (mainly the subway), and I'm also worried because I won't have anyone to help me out post-op. and of course I HATE not being independent, and what's worse is i'm right handed and that is the side i'm having resected.

Any suggestions????


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Old 05-01-2013, 10:03 PM #10
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I am 3 weeks post-op from a first rib resection and now doing pretty well, but still on oxycodone, although significantly lower dosages then the first couple weeks. The first 2 weeks were a bit tough for me in terms of post-operative pain and to be honest with you I had to be re-admitted once for another few days for IV pain control. I am a registered nurse in a busy Boston ER so I probably will not be able to go back to work for another month or so, which is right on target per my surgeon. If I had a less physical job, I could foresee going back sooner.

Best, Lisa

Thanks for the feedback. previous extensive surgeries (non-rib related), we found out, narcotics don't work for me. the strongest meds they could prescribe is hydromorphone, and being allergic to NSAIDS is the other issue (in terms of inflammation). I will just have to find out, tomorrow's my 5 HOUR (pre-op assessment - not looking forward to having to take the day off work). i'm just hoping something can sorted out. Thank you again for the feedback. It's very helpful to know what I should somewhat expect.
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