Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-04-2013, 02:03 PM #1
OzKira OzKira is offline
Junior Member
 
Join Date: Dec 2010
Location: Melbourne Australia
Posts: 83
10 yr Member
OzKira OzKira is offline
Junior Member
 
Join Date: Dec 2010
Location: Melbourne Australia
Posts: 83
10 yr Member
Default Please help fellow TOSer win a wheelchair accessible vehicle

LoriAnn has TOS and suffers from nerve damage post op and needs a wheelchair to get around. Please read her story and vote. You can vote once a day due to isp being recognized but you can also get 2 votes counted each day by answering the question on the left picture when selected. Fellow Toser's on facebook have been voting daily when her family have given up doing so. Your help would be greatly appreciated. I live in another country and vote daily.

http://www.mobilityawarenessmonth.co...9vGso.facebook
__________________
[SIGPIC][SIGPIC]
OzKira is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ladylaura418 (05-04-2013)

advertisement
Old 05-09-2013, 08:22 PM #2
chloecasey chloecasey is offline
Junior Member
 
Join Date: Jun 2012
Posts: 98
10 yr Member
chloecasey chloecasey is offline
Junior Member
 
Join Date: Jun 2012
Posts: 98
10 yr Member
Default

[QUOTE=OzKira;980682]LoriAnn has TOS and suffers from nerve damage post op and needs a wheelchair to get around. Please read her story and vote. You can vote once a day due to isp being recognized but you can also get 2 votes counted each day by answering the question on the left picture when selected. Fellow Toser's on facebook have been voting daily when her family have given up doing so. Your help would be greatly appreciated. I live in another country and vote daily.

http://www.mobilityawarenessmonth.co...9vGso.facebook[/QUOT

Hi Curious to know if Loriann posts on this forum.....wondering what were the complications she had that caused the nerve damage?

Thanks chloecasey
chloecasey is offline   Reply With QuoteReply With Quote
Old 05-10-2013, 12:28 AM #3
OzKira OzKira is offline
Junior Member
 
Join Date: Dec 2010
Location: Melbourne Australia
Posts: 83
10 yr Member
OzKira OzKira is offline
Junior Member
 
Join Date: Dec 2010
Location: Melbourne Australia
Posts: 83
10 yr Member
Default

[QUOTE=chloecasey;982246]
Quote:
Originally Posted by OzKira View Post
LoriAnn has TOS and suffers from nerve damage post op and needs a wheelchair to get around. Please read her story and vote. You can vote once a day due to isp being recognized but you can also get 2 votes counted each day by answering the question on the left picture when selected. Fellow Toser's on facebook have been voting daily when her family have given up doing so. Your help would be greatly appreciated. I live in another country and vote daily.

http://www.mobilityawarenessmonth.co...9vGso.facebook[/QUOT

Hi Curious to know if Loriann posts on this forum.....wondering what were the complications she had that caused the nerve damage?

Thanks chloecasey
Hi Chloe

I am not sure if LoriAnn is on neurotalk forums but she is on the facebook TOS support group some of us from here are on. For some people nerve damage and paralysis can occur during surgery and this happened to LoriAnn. I haven't had surgery but was warned by my specialist that it was the worst case scenerio if I had surgery. The nerves in the brachial plexus must have been so damaged that the surgery did more harm than good there. My own surgeon is doing every scan and test possible to mentally pre plan my surgery but sometimes things don't show up on tests. LoriAnns story is one of the worst I have heard of apart from botched surgery from bad surgeons. I hope this helps answer your question

Regards
Tracie
__________________
[SIGPIC][SIGPIC]
OzKira is offline   Reply With QuoteReply With Quote
Old 05-10-2013, 10:33 AM #4
chloecasey chloecasey is offline
Junior Member
 
Join Date: Jun 2012
Posts: 98
10 yr Member
chloecasey chloecasey is offline
Junior Member
 
Join Date: Jun 2012
Posts: 98
10 yr Member
Default

[QUOTE=OzKira;982283]
Quote:
Originally Posted by chloecasey View Post

Hi Chloe

I am not sure if LoriAnn is on neurotalk forums but she is on the facebook TOS support group some of us from here are on. For some people nerve damage and paralysis can occur during surgery and this happened to LoriAnn. I haven't had surgery but was warned by my specialist that it was the worst case scenerio if I had surgery. The nerves in the brachial plexus must have been so damaged that the surgery did more harm than good there. My own surgeon is doing every scan and test possible to mentally pre plan my surgery but sometimes things don't show up on tests. LoriAnns story is one of the worst I have heard of apart from botched surgery from bad surgeons. I hope this helps answer your question

Regards
Tracie
Thank you for your response....I am not on facebook but might just have to join.
I had surgery in Jan. 2011 which resulted in complications that required 2 further surgeries.....all 3 in the same surgical site, certain that all surgeries messed with nerves so much that I have ongoing problems and can not at this point find a solution.

chloecasey
chloecasey is offline   Reply With QuoteReply With Quote
Old 05-10-2013, 03:01 PM #5
OzKira OzKira is offline
Junior Member
 
Join Date: Dec 2010
Location: Melbourne Australia
Posts: 83
10 yr Member
OzKira OzKira is offline
Junior Member
 
Join Date: Dec 2010
Location: Melbourne Australia
Posts: 83
10 yr Member
Default

[QUOTE=chloecasey;982360]
Quote:
Originally Posted by OzKira View Post

Thank you for your response....I am not on facebook but might just have to join.
I had surgery in Jan. 2011 which resulted in complications that required 2 further surgeries.....all 3 in the same surgical site, certain that all surgeries messed with nerves so much that I have ongoing problems and can not at this point find a solution.

chloecasey
Thats not good at all Chloe. There are many that have had surgery and had problems. If you want to joing facebook the group is https://www.facebook.com/groups/TosSupport/ We are a worldwide group and there is always someone online to talk to and get some idea's and support from. If you do join I am Angel Tracie on facebook.

Take Care
Tracie
__________________
[SIGPIC][SIGPIC]
OzKira is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Wheelchair Accessible Electric Car BobbyB ALS News & Research 1 07-25-2007 10:55 AM
Second wheelchair-accessible race car in the works BobbyB ALS News & Research 0 06-15-2007 12:58 PM
hello to all my fellow toser's oldsman2 Thoracic Outlet Syndrome 8 12-20-2006 03:57 AM


All times are GMT -5. The time now is 11:38 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.