Had my surgery on September 10th 2012 and after 8 months post surgery I have good and bad to report which has brought me back.

The good:
*The upper shoulder pains are gone and I have finally figured out my management meds for the symptoms that still remain. Current meds are Lyrica and Viibryd (can not miss this one or the day is just ruined).

The bad:
* Still only working 30 hours a week because of lack of energy and pain that comes from sitting in my trapezius region from long periods of sitting.
*Lack of energy is so bad that even though I am not eating anymore I have gained 20lbs in the last 8 months.
*Have a really hard time getting restful sleep.


Any advice? I want to go back to full time. (Finances have slowly gone down hill-supporting family of 4 on this 30 per week) I do take 2/40 milligram adderalls per day in morning and mid afternoon. I feel gross from the large about of weight gain in such a small period of time and the most pressing is that I don't feel like me anymore...I have no energy at all...no zest for life..Its just plain depressing.

You all have been so wonderful and supportive. Going to see primary soon and anything I can take with me or suggestions are much appreciated.

Fibromyalgia (FM or FMS) can occur along with TOS. Long time members have mentioned that connection in the past, it hasn't been mentioned recently though.

You might look into that for the extreme fatigue & lack of restful sleep.
We have a Fibromyalgia forum here also.
Fibromyalgia and Chronic Fatigue
http://neurotalk.psychcentral.com/forum12.html

Well, found out what it was...and for once I'm thrilled...I'm pregnant!

Wow, I didn't see that one coming. Talk about having doubly good news! Congratulations!

Congrats!!! Always great to hear great news!

Hi,
So sorry to hear, the BAD. However, if you are able and it sounds as if you are getting depressed try pushing yourself to walk. A little at a time. My doc says I am going to be walking the day of surgery and thereafter a little more everyday. I asked if I could use my treadmill (in case the weather stinks) and he said, sure. I hope this helps, let me know what your doc says. Hit the book icon by mistake, sorry, lol.

Awesome! Congratulations

Thank you for the congrats everyone! Kind of nervous...primary doctor is having me taper off my meds...the hardest so far being the viibryd...it has has been my best progress since surgery. Hoping that the pregnancy will go alot smoother since my last one (she is about to turn 4 in November) is what set of my TOS. Who knows..pregnancy does strange things to the body...it may make me feel almost normal again...which is what I have been slowly working towards. I'll keep you guys posted...anyone else have pregnancy after TOS surgery or TOS in general...there doesn't seem to be much to read on the subject.

Amber

Not sure if I am doing this right? My son is on nothing and is still in a great deal of pain. What has helped you? He is beginning to lose hope.

hi Jo mar, I was convinced with all my symptoms that I had it before receiving my TOS dx. Perhaps there is a link?