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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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07-27-2013, 06:39 PM | #11 | ||
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07-27-2013, 06:45 PM | #12 | ||
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Elder
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I have cronic pain too. It's all in my head takes the cake. Just why am I fused C3-7 then? people can be real idiots if they never experienced real pain that just doen't go away. ginnie
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07-27-2013, 07:01 PM | #13 | ||
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Quote:
I'm glad u wrote about this. To hear your stories and others, shows us all we are in this together. I'm thankful and blessed to have this forum. It allows us to laugh, share our stories, lift one another, and to pray for one another. God bless |
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"Thanks for this!" says: |
08-08-2013, 03:59 AM | #14 | ||
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My bosses told me to "be at work more often" since I was missing work with flare-ups and/or doctors appointments in 3 states. When I told them I skipped a drs appointment to be at work, they told me, "I never told you to do that." So then I replied, "what do you want me to do." Believe it or not, he repeated "be at work more often."
I've been told, "at least you're alive" since my TOS began after my breast cancer surgeries and chemo. (yep, I'm one of those lucky ones) While it hasn't been blatantly said, it's been implied that since I can do some things on some days I must be faking or it's not that bad. I've been told I look fine, so why aren't I doing better? I could fill a book with the lines I've heard from people. |
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10-29-2013, 02:07 PM | #15 | ||
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LOL, stupid advice is a great thread topic!
"Live with it because I can't help you" "Go home and enjoy your life, you will outgrow this" "Your hand goes pure white when you raise your arm, and then it quickly flushes bright red when you lower it, because you are tall and the blood has a long way to travel down your arm and back" All given by doctors to my teenaged son who was later diagnosed with arterial TOS |
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"Thanks for this!" says: | brisco71 (12-22-2013) |
10-29-2013, 03:44 PM | #16 | ||
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Wow, I just read this whole thread and wanted to laugh and cry at the same time!
After my recent, sudden and very unexpected diagnosis of Paget Schroetter's with immediate surgery for partial 1st rib resection... When people ask what happened to me and I explain it they all clutch their lower ribs! I think my favorite bad advice was one family member telling me that essential oils would heal it and prevent it from happening on the other side. I had to fight her off as she attempted to dowse my freshly healing incision! |
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"Thanks for this!" says: | brisco71 (12-22-2013) |
10-30-2013, 07:25 AM | #17 | ||
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I was told many things by many people. I tried everything under the sun including seeing some Chinese herbal doctor who said it was stress and had me drink some nasty tea for several days. It stunk so bad when making it and even worst to drink. Did acupuncture, several forms of chiropractic treatments which found Gonstead method the best. Three surgeries, Energy healing, etc etc etc. I finally found the things that are working for me that I put in an early post.
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11-06-2013, 09:14 AM | #18 | ||
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11-06-2013, 04:00 PM | #19 | ||
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Junior Member
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Put some Icy Hot on it!
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11-06-2013, 04:58 PM | #20 | ||
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Junior Member
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One MD told me to stop stressing out, "have a glass of wine and go dancing." LOL
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