What is the stupidest advice you have ever received for TOS? Or - the most ignorant comments. Or, the things that did not work!

I always get "Oh, you mean you have carpel tunnel?"

Stupidest advice was someone told me to wrap my arms in cabbage and put saran wrap around it to hold it in place. This was supposed to attract blood flow. I did it and hurt like *(#))(! the next morning.

And, I am always told "why don't you try acupuncture?"
Because I have and it did nothing, that is why.

Lol....wow I could go on forever with the worst advice and ignorant comments about TOS I have gotten. I also several times got the advice to try acupuncture. Or to see a chiro, but my PT was so great and did everything a chiro would do anyway, so I never saw a point.

Also, a close fam member is so ignorant that he said I am "a baby" and I am "blowing my "disease" way out of proportion" and people have it "way worse" etc etc. If I didn't have arm pain, I probably would have punched him and said "that is .0000000001% of the pain I experience on a constant daily basis so stop freakin' comparing my disability, not my "disease" or "injury" to cancer, people who don't have limbs, or to ANYONE because you have no idea what you are talking about!!!" SOOO frustrating because since I "look fine" it means it can't be "that bad" to any ignorant person. Also because I have TOS, I should be confined to my home and cannot have a little fun and attempt to live a normal life, according to MANY ignorant people.

Ok I am done venting lol.

Unless that person knows what "chronic pain" feels like they will never be able to see that it is an "invisible condition" and what all of us experience is very real......they so need a reality check!

Also wanted to add....look at a page from Peripheral Neuropathy Site....look under Sticky where it gives helpful sites to research and I believe it is on page 4....a post that someone wrote a very good letter to "normals" from someone in chronic pain......so too the point!

chloecasey

"You just have the wrong attitude."
or
"You need: exercise, massage, etc."

and when people say insensitive things like this, I can't even go home and punch a chair or a pillow. No safe outlets anywhere.

pt at a reputable place rec'd NECK CRUNCHES

i did neck crunches!!!!!!!!!!!


good lord

I've never seen a 60, 70 or 80 year with TOS

Ya know the feeling. I had tos sx for 8 yrs. Bf dx. Tried a lot of treatments n spent a lot of money!! Most people would not of tried these or spend 18,000 out of pocket for tx.
Lot of. Prolotherapy injections for ligament laxity.
10 Bowen therapy tx.
Accupuncture.
Chiropractic tx.
Massages, Cortisone injects. in neck, shoulders, surgery in elbow for ulnar n. decompression, shoulder surgery for decompression acromian, bursitis, and ACDF surgery, surgeon said all my sx are from my herniated disc & spinal cord comp.
Talk about desperate for pain relief !!!

Priceless ignorance.

I've read that women with breast cancer can develop TOS after undergoing mastectomy and lymphectomy. So much ignorance in the medical community regarding TOS.

It's all in your head. There is nothing wrong with you. Do you want a referral to a psychiatrist?