Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-20-2015, 01:34 AM #21
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Default Same surgery

I had surgery at MGH in feb 2015 (rib) and aug 2015 (pec minor) also! How are you doing now? I am about 8 months post rib resection but still experiencing the main symptoms, though some got better.

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Originally Posted by toslady View Post
Kelly,

I had redo surgery on Aug. 13, 2015 with Dr. Donahue of Massachusetts General. Years ago I had "surgery" with another doctor at another institution.

Like you, I emerged from my original surgery in worse shape than before my surgery. In addition, I was in severe pain after surgery.

Although it is too early for me to consider the redo surgery a success, I am cautiously optimistic. I am slowly but surely improving. I have not experienced much pain from my redo. My flight back from Boston was much less painful than my flight to Boston. Occasionally I overdo my physical activities and have painful episodes.

In my opinion, redo surgery is riskier than original surgery and many surgeons are reluctant to do redo surgeries, particularly if the original surgery was by another surgeon. However, if you select a competent, skilled surgeon (like Dr. Donahue), I believe you have a reasonable chance for a successful redo surgery.

Good luck to you in whatever you decide to do.
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Old 11-03-2015, 07:15 AM #22
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Default Redo surgery - 12 weeks after

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Originally Posted by ExNx View Post
I had surgery at MGH in feb 2015 (rib) and aug 2015 (pec minor) also! How are you doing now? I am about 8 months post rib resection but still experiencing the main symptoms, though some got better.
ExNX,

My TOS symptons have greatly improved because of my redo surgery. However, as I mentioned in my earlier post, I had complications from my first "surgery" in Maryland and these are still present.
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Old 11-07-2015, 02:05 PM #23
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I am also interested in this. It's been a year and although the blood flow is good, pain is still a major issue. I am considering going to Boston to see dr D. I am having an MRI of the brachial plexus next week which was ordered by a local TOS surgeon.
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Old 11-07-2015, 06:57 PM #24
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Default Redo surgery- Dr. Donahue

In my opinion, your proposed visit to Dr. Donahue is a wise choice. Some of the posts about him seem too good to be true, but he is a remarkable surgeon.
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Old 11-11-2015, 08:07 PM #25
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Default Re do

Hello. I had surgery last April. It was scheduled to be a rib resection but they did not remove my rib. Few days after my surgery I got really sick, thanks to work comp rejecting some medication. Off course this caused me to vomit a lot and I blew a blood vessel in my neck where my incision was causing a Hematoma. I then had to have another surgery to remove it just a month after the first surgery. All in all recovery did not go well and my symptoms are worse. I also came out of surgery with a damaged phrenic nerve so my diaphragm is not working. So after 6 months of worse pain, worse hand numbness, hand going cold and continuing headaches the decision was made to have another surgery. They are going to remove my rib for sure this tis time and do the usual. They are also going to wrap my brachial plexus with embryotic tissue. I am a test patient and I'm ok with that. I hope my results can benefit someone in the future, as I know I will never be 100% again. I just hope this time that it goes well.
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Old 12-12-2015, 10:05 PM #26
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Smile

Huntingful, best of luck w your redo surgery. Hope things turn out better for u this time around!
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Originally Posted by huntingful View Post
Hello. I had surgery last April. It was scheduled to be a rib resection but they did not remove my rib. Few days after my surgery I got really sick, thanks to work comp rejecting some medication. Off course this caused me to vomit a lot and I blew a blood vessel in my neck where my incision was causing a Hematoma. I then had to have another surgery to remove it just a month after the first surgery. All in all recovery did not go well and my symptoms are worse. I also came out of surgery with a damaged phrenic nerve so my diaphragm is not working. So after 6 months of worse pain, worse hand numbness, hand going cold and continuing headaches the decision was made to have another surgery. They are going to remove my rib for sure this tis time and do the usual. They are also going to wrap my brachial plexus with embryotic tissue. I am a test patient and I'm ok with that. I hope my results can benefit someone in the future, as I know I will never be 100% again. I just hope this time that it goes well.
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Old 12-13-2015, 01:04 AM #27
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I hope you have drs & atty that will make sure all agencies are notified about the WC med denials being the cause of your complications and more surgeries...

Perhaps send copies to government representatives & congress persons..they need to know this is happening to people.
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