Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-05-2006, 02:59 PM #31
LisaL-TOS LisaL-TOS is offline
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Default Not a prude but.................OT

Liz and others I am glad for your own personal safety and protection and confidentiality of this issue, that you deleted your posts.

This forum can be viewed by all ages and some have no idea what TOS and other diseases can do to couples. All they read is PG13 or ?? rated posts.

There are also men on this forum reading. Count me old fashion but I do not care for strangers reading about my sex life. I do not want to read about there's.

I know when there is a personal issue on my forum..there is an exchange of personal e-mails via PM and a group of ladies do their private talking via personal e-mail and CC the others. It works very well. They feel much safer this way and their privacy is safeguarded.

Signed: No Prude Prissy here.
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Last edited by LisaL-TOS; 10-05-2006 at 03:55 PM. Reason: Typo
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Old 10-05-2006, 06:13 PM #32
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Watching this with interest. I don't have TOS, but can relate to the pain-related issues. Or should I say, used to be able to relate, but then I'd have to wisecrack about how long it's been and then I'd get in trouble. Oops.

At first I thought a passworded forum might be the answer but then...that would be a whole other difficult issue to address because then who would decide who could have the password and who couldn't. So, that's a moot suggestion.

I'm sorry for the types of pain you have. Pain is a nasty thing.

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Old 10-05-2006, 06:27 PM #33
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I guess I find it very distressing that there are issues in my life that are directly affected by my having TOS that I am not allowed to talk about with the only people I know who have the same problems that I do. I guess you people think that the only place sex should be talked about is on the bedroom or the porn sites.
I asked for help in a support forum, and am now walking away feeling more distressed and alone then ever before. I was just looking for one good thing in a life full of pain, lonliness and dissappointment. I won't bother anyone here anymore.
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Old 10-05-2006, 10:30 PM #34
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please see this post by DocJohn-
http://forums.braintalk2.org/showpos...7&postcount=13
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Old 07-21-2010, 07:41 AM #35
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Default I must be the odd one out.

I know this is a very old thread, But I do not know how this is effecting most of you in a bad way, (IE) Drowsy, lethargic, and general not being able to function even on 2 to 4 MG of Zanaflex.

I take 4 to 8 mg anytime of the day, It doesn't phase me in the slightest.
It helps my neck a bit. Nothing to write home to mom about.

Ive been on Flexeril also, which has nasty heartburn side effects.

Guess I should be thankful that I don't get drowsy.

Thanks for the info on this forum. It was interesting reading.
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Old 07-26-2010, 10:56 PM #36
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Default missed all the fun

zanaflex & flexoril - i don't remember the dosage but it has never made me drowsy. i wish it would so i could use it for a sleep med. as for enjoying a partner - i can't remember that far back. sigh.
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Old 03-01-2012, 03:57 AM #37
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Hello, I'm new as you can probably see. I've been on Zanaflex for appx 10yrs 4mg 4 times a day. I've never had any the effects on here I've read about. I see my pain MD tomorrow and, planning to increase my Zanaflex up to 8mg, 4times a day. If I get the Ok I'll let you know how it's going.
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Old 03-03-2012, 07:11 PM #38
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I've been on Zanaflex for about 2 weeks now. Soma and Flexeril have no effect for me anymore. I'm a bit odd as most drugs at normal doses don't make me drowsy. Zanaflex at 4mg doesn't but it does at 8mg. No real side effects for me at 4mg but I have very vivid dreams at 8mg (kinda cool side effect if you ask me). As my symptoms are worsening, 8mg is only keeping me asleep 2-3 hours now and not offering me much tension relief anymore.
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