Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-20-2013, 08:36 AM #11
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Originally Posted by Eight View Post
Also, I called Denver, and I guess Dr. Sanders did not retire...

Dr. Sanders is still doing diagnostic testing, but the actual surgery would be done by Dr. Annest with Dr. Sanders assisting/observing.
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Old 11-20-2013, 01:01 PM #12
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I had pec minor surgery with Dr. Sanders in 2008 ---- my first surgery. It did nothing. It is an easy surgery and recovery is easy. I had a final the next week and was able to take it.
The problem with TOS is that they need to fix the reason you got it in the first place. For people with extra ribs or DVT's, they fix those and the people can get a lot better ---- they fixed the problem causing the TOS. For other people with screwed up shoulders, clavicles that are sunken down and unstable, hypertrophied subclavian muscles, etc...the pec minor surgery or the rib/scalene removal does not fix the problem. Don't get me wrong --- it does help, but mostly because of the neurolysis and decompression of the inflamed/lesioned nerve that is hypersensitive and chronically irritated as a result. For these people, their TOS can come back if they continue with their old ways and don't learn how to adapt and move their bodies in new ways. For example, the structural problems of the shoulder, clavicle, scapula, etc. will still cause nerve stretch problems with certain movements. Over time, these movements can stretch the nerve and irritate the BP enough that it gets irritated/inflamed again and TOS is back. There are so many ways TOS can be caused and hopefully surgery addresses the cause.

Why TOS is so tricky: the medical community doesn't really understand all the variations of TOS, and its causes. Also, the diagnostics just aren't there yet --- making TOS a bit of an exploratory surgery.

Gotta go. Sorry for the lengthy post. I wish everyone success with their TOS journey.
Thanks, TOStrojan. Any long term ill effects of the surgery (struggle lifting things a certain way, instability, etc.)? Have read a lot of people on this site warning people of that.
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Old 11-20-2013, 03:06 PM #13
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I had it done and noticed no instability
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Old 11-20-2013, 05:14 PM #14
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I read about the pec minor on here, and that made a lot more sense based on what my symptoms are, than the first rib resection. My pulse does not completely stop when they do the TOS tests, but my hands become freezing and then tingling. Also, the pec minor syndrome causes a lot of chest pain - similar to what people describe what a heart attack feels like. I have gone to the ER a couple of times with chest pain, as it was only on my left side to start out with. They looked at me like I was a nut job both times, as I am only 33 - I think I was 26 the first time I went, and I have an excellent heart.

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Heh, same here. ER first and cardiologist later. Cardiologist geeked out about how perfect my heart was. I guess he looks at bad ones all the time, so it was notable to him.
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Old 11-20-2013, 05:15 PM #15
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Originally Posted by TOStrojan View Post
...

Why TOS is so tricky: the medical community doesn't really understand all the variations of TOS, and its causes. Also, the diagnostics just aren't there yet --- making TOS a bit of an exploratory surgery.

Gotta go. Sorry for the lengthy post. I wish everyone success with their TOS journey.
Sorry? That was an excellent post with a succinct explanation of why TOS is complicated and why people get different outcomes from the same surgery. You should probably post it separately and ask an admin to make it a sticky.
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Old 11-20-2013, 06:54 PM #16
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I had it done and noticed no instability
Thanks Eddiemaverick. Were you forced to keep your arm down for a period of time during recovery (I've heard this is the case)? Have you ever been limited in activity since then (other than during recovery)?

There is quite a bit of information out there about the causes and procedure for this, but very little about the aftermath.
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Old 11-20-2013, 07:33 PM #17
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What exactly are the possible causes?
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Old 11-20-2013, 07:52 PM #18
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I have not been forced to keep my arm down; in fact I've been given range of motion exercises that include overhead motions. I am no more limited in activity than I was prior to surgery; but that isn't saying much as I wasn't doing much prior. One thing I have noticed however is that my range of motion overhead is greatly improved.

I can honestly say that the pec minor tenotomy has been an easy recovery so far compared to a first rib resection.



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Thanks Eddiemaverick. Were you forced to keep your arm down for a period of time during recovery (I've heard this is the case)? Have you ever been limited in activity since then (other than during recovery)?

There is quite a bit of information out there about the causes and procedure for this, but very little about the aftermath.
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Old 11-21-2013, 02:40 AM #19
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I have not been forced to keep my arm down; in fact I've been given range of motion exercises that include overhead motions. I am no more limited in activity than I was prior to surgery; but that isn't saying much as I wasn't doing much prior. One thing I have noticed however is that my range of motion overhead is greatly improved.

I can honestly say that the pec minor tenotomy has been an easy recovery so far compared to a first rib resection.
Thanks for the update. Have you tried any moderate overhead physical activity? Lifting anything overhead?
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Old 11-21-2013, 05:57 AM #20
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No, so I can't offer you anything on that front. Dr. Donahue did say that he has professional athletes who've had it done and had no detriment. He also said that thair shoulder specialists there at MGH are unable to find any significant detriment to the tenotomy procedure.
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