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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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07-21-2014, 05:44 PM | #21 | ||
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Hi can you please mail or message me an estimate of costs for your entire treatment with Dr Lum, your TOS cause and symptoms are scarily like mine. I intend to probably visit the US and see a doctor. The costs are a big factor.
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07-21-2014, 09:57 PM | #22 | ||
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wlcasa -- Wow, you have certainly been through a lot and I admire your perseverance! I appreciate all the additional detail and I'm sure others on the forum will find it helpful as well.
I'm familiar with the venous duplex test, but what is the "bilateral arterial/venous TOS evaluation" ? Does it measure blood flow? Or, is it some sort of imaging of the arteries and veins?? Again, thanks for all the additional info...you've given me some hope! Last edited by cyclist; 07-22-2014 at 11:56 AM. |
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07-23-2014, 05:53 PM | #23 | ||
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Quote:
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08-13-2014, 12:53 PM | #24 | ||
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I can recommend using creatin supplement while you are working on restrenghtening your muscles. Yana |
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08-14-2014, 12:07 PM | #25 | ||
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Hi Yana, thanks for the tip, every bit helps. I guess you were referring to wlcasa but we are all in the TOS boat and hope we all get better.
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01-23-2015, 03:48 AM | #26 | ||
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Thanks for sharing your story ! Did you mention in your post that you can recommend this Dr.? Thanks for your help and that you recovered well !! Greetings to you. TOS Patient.
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01-27-2015, 03:51 PM | #27 | ||
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Hi, everyone. It has been a while since I posted and I wanted to follow up with a response on how I have been post surgery. I underwent surgery for a first rib resection and scalenectomy back is September 2014 with Dr. Lum at Johns Hopkins followed by venoplasty 2 weeks later. It took me a really long time and many doctor consultations, each with a different surgical approach before I finally decided to have the surgery, and am very happy to have decided to have the surgery with Dr. Lum. The surgery took about 2hrs from the time I was taken into the operating room. The incision was made tranaxiallary (armpit) and is about 2-3 inches long. . I was pretty soar all over after the surgery not just around the incision but pretty much my whole upper body, but I was able to manage with the pain medication I was given. I didn't get much sleep while in the hospital but I was able to walk around my floor throughout the night which I think helped in my recovery. I stayed in the hospital overnight and was released the next day in the early afternoon. The first week 2 weeks post surgery I was pretty soar but was able to do all activities of daily living just being cautious. I did experience some numbness in my armpit and the back of my arm, but that has gotten better over time and has pretty much disappeared. During my surgery I also experienced a small pneumothorax which caused my breathing to be a bit labored for a few days post surgery, but that also healed on its own and did not require a chest tube. I started physical therapy about 3 weeks post surgery and returned to work 5 weeks post surgery with a restriction of 10lb weight limit. I am extremely happy that I chose to have surgery with Dr. Lum and cannot say enough good things about him. He was always very easy to contact through email and always answered any questions that I had.
I know it is a difficult decision to make to have surgery and ,I would be happy to answer any questions anyone may have about my surgical experience. |
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01-28-2015, 12:31 AM | #28 | ||
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I want to ask you what you think about doing PT/what type of exercises you did. Im 22 and have already been going to the gym to run/lift lightly starting 2 weeks post op and have experienced no problems. With that in mind would you still recommend physical therapy? Is there some special stretch or exercise that I should be doing (28 days post op)? thanks |
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01-28-2015, 12:33 AM | #29 | ||
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Great to hear of the positive experiences with Dr Lum, thanks for coming back with updates! And, Soccy - I do have a few questions, if you don't mind...
- What does Dr Lum say about the potential for scar tissue issues post-op? Does he do anything specific during surgery to mitigate scar tissue? And, does he have recommendations for the patient on how to mitigate scar tissue problems post-op? - What does Dr Lum recommend for post-op physical therapy? Are you doing PT at Johns Hopkins? Can you describe some of the key components of your post-op PT regimen? Any info would be much appreciated. Thank you... |
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02-01-2015, 02:02 PM | #30 | ||
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I would definitely recommend physical therapy post op. I was in therapy for about two and a half months going 3 times week. I did not have my therapy at John's Hopkins but rather at an outpatient facility close to home. I was given a exercise protocol by Dr. Lum that my therapist followed. The beginning of therapy was centered around eliminating the soreness and increasing range of motion. As the soreness subsided it focused more on strengthening exercises and posture training.
I am not sure what percentage Dr. Lum quoted me for post op scar tissue formation, but a key part of the physical therapy was aimed at reducing the incidence of scar tissue formation with soft tissue massage and stretching exercises. Again let me know if there are any other questions I can help with. |
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"Thanks for this!" says: | cyclist (02-03-2015) |
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