Thanks so much for the update. Your experience sounds a lot like mine. I agree that after going through a surgery like this it becomes very clear why it's so important to go to an expert if at all possible. You want someone who is prepared for any of the weird things that could be going on in there. I also had fibrous muscles as well as some scar tissue from a previous (mostly exploratory) surgery that I had done about 10 years ago before I really got educated about TOS and found Dr. Thompson.

Sounds like you're keeping on top of your meds, and you're right - the pain's no joke. The app you're using sounds really good. It's a lot of meds at first. It feels good when you're able to transition off some of them.

Thanks for keeping us posted. Take care and happy healing!