Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Old 06-01-2007, 06:50 PM #1
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I'm still hanging around in the wings. Started with a pain management clinic that's wanting to do the surgically inserted version of the tens unit. Still kinda leary of surgeries, haven't had the best luck with them so far. taking things slow and steady and just being or trying to be me again. Food talk is making me hungry, im just glad its done and ready to eat, so i got to go. have a good pain free or as much pain free day as you all can get.

chris.
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Old 06-01-2007, 08:15 PM #2
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Yum...munch munch munch (thanks Curious and Astern) (picture Shelley stuffing her face)

Oh yeah its June and I am Here! (saluting Jo)

Hope everyone is having a low pain day

for the room

Can someone pass the milk?
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Old 06-01-2007, 09:21 PM #3
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Here are some Sprinkles Cupcakes for everyone. My fave is the red velvet.
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Old 06-01-2007, 11:02 PM #4
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Anne - that sounds like a good offer- I hope it works out. ohh! the pies are showing now -mmmmm
Chris - good to hear from you - is that unit a SCS? like beth got? she says hers is nice and helps a lot. her newest post about is on a Poll thread on the RSD forum.
Dolfinz - best of luck in Boston!
Shelley - I think I'm somewhat lactose intolerant- but how about pink lemonade - will that be OK?
Curious - choccy!!!

I've tried to find some nice pics of a fruit bowl or a green veggie salad , but no luck!- so as soon as my garden grows a bit more I'll take a pic of it.
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Old 06-01-2007, 11:18 PM #5
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did somebody say milk?

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Old 06-02-2007, 08:47 AM #6
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Hi all
I am presently having big probs again, despite my meds..pins and needles are recurring more so, problems with dead arming self, position doesn't make a difference. Tried getting up bed a little few nights ago, slipped in fold of mattress, and had excruciating pain over collar bone in arm and hand - won't be doing that again. Hands hurt a lot. Still awaiting other referral....like everything takes time....I will have to find out what is going on.
Basically fed up plus warm weather making breathing harder.
Oh well must not moan.
Sorry...usually don' go on but just hvaing horrid time.

Take care one and all and hope things are improving for surgery ones and DDMAy MArk hope pump is doing ok.

Best regards
Hx
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Old 06-02-2007, 12:01 PM #7
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It's very nice to hear from Chris and see that he's still hanging around, even if he doesn't post as often as he used to. Also great to hear from Horizontal One- I'm so sorry to hear what you're having to go through though.
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Old 06-02-2007, 10:13 PM #8
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HI ALL
Jo, that millk is making me get belly aches and am running !!!! YIKES
LOL

I am glad it is summer at last, Katie is out of school June 7th.
I am taking the Lexapro that helps, but I am still sad...not all the time, just some memories,

My family is making all kind of plans to keep me busy....somedays I just want a hug,,,,
Work is so good to me, the hours have been less the last month with Mothers Day and Holidays many parents cancell so I had Mothers Day and Memorial Day off. I have generally kids 8-13 and they are great.

I have many things to be happy for, my family on here, new friends and long time mean the world to me,
Thanks for keeping our forum here,
Love Di
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Old 06-05-2007, 09:42 PM #9
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I'm new to this sight but have found it so helpful to know there are others like me who actually understand. I see my surgeon on Thursday and he will want to schedule rib resection soon. I'm very nervous but in so much pain I want to die. I am about out of my mind in pain. I have been in pain for years and have had 4 surgeries in the last 2.5 years. I had a 3 level fusion in my cervical spine and after the surgery still in pain new MRI doctors noted bilateral extra rib now I have diagnosis of True TOS all my pain is left sided but pulse is dead bilaterally. I'm so confused I have seen a neuro surgeon who just did a ulnar nerve decompression wit transposition 3 week ago and he had confirmed the diagnosis and recommends the surgery and says that the Cardio Vascular surgeon I am seeing is a great surgeon My ortho pedic surgeon who did the three level fusion in cervical also confirms the diagnosis and he gave the same opinion about the Cardio surgeon. I felt very comfortable with the Cardio vascular surgeon who told me he wanted me to have the ulnar nerve decompression and that he would schedule the surgery this week. I just don't know what to do all doctors have a concern that it is positive on both sides and are in hopes that after surgery with therapy I may be able to prevent right side surgery. The disc above my fusion has also ruptured and I will have to have disc replacement within 24 months. I have been in so much pain I had to finally quit work 2 years ago and I await a hearing for my SS disability unfortunately I don't hold out much hope since I was turned down at reconsideration I have 3 doctors stating I am totally disabled so I just pray it will happen one day. Mean while I have lost everything house car etc depleted all savings. I will have bankruptcy hearing next week. Anyway in some ways I just feel a glimps of hope that I could get some relief from the surgery I know I'm rambling but I am in so much pain I just don't know what to do. Any information or input would be greatly appreciated I only found this sight last week and I feel so happy to talk to people who know the valley.

Thank you
Beverley
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Old 06-05-2007, 10:24 PM #10
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Default Oh No!

This is sure a fattening thread, but I will stop and say Hi and then go out for a walk!

Peggy
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